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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

Hello all -

I'm a 27 year old white male with something strange going on with me.

Back in February, I was having sensation on the left top of my head that worsened to sharp pains if I was tense or stressed. I went to see a nuerologist, and he ordered a brain MRI. I also started seeing a chiropractor, and that really helped the sensation and pain.

But then the MRI came back showing 6 very small T2 weighted hyperintensities in the white matter on the left side of my head. Well, needless to say, it really upset me. Over the course of the past 6 months, I've had various other symptoms like:

-Minor facial numbness on left side that comes and goes
-Minor tingling in left hand (had that twice now, for about 3 days each time)
-Odd sensation in lower left leg that has progressed from twitching to just a constant fatigued feeling
-Overall fatigue that just seems to never go away
-Periodic extreme tired left eye
-Sometimes I just feel like I'm in a fog - feel like I'm not as sharp as normal
-Headaches/pains towards the front of my face. They aren't constant - almost seem like they're positional.
-Can't sleep well - wake up lots at night time
-I seem to sigh a lot - not sure how else to describe it, I take deep breaths all the time
-Minor muscle twitches in my lower left leg on and off - primarily only when I'm sitting down.
-Eventual pain in lower left leg if I sit for a really long time.
-Stiff hands in the morning that get better throughout the day.

Now, I've had about every test done that I know of.
-Second brain MRI (no change),
-Lumbar puncture (negative for MS)
-Spinal MRI (nothing other than minor degeneration where I had a vertebrae out of whack)
-Blood work (nothing wrong there, checked Thyroid)
-EEG on left leg and left arm/hand (diagnosed with minor carpal tunnel in left hand - I do type all day long)
-Eye test (astigmatism in left eye)

And I'm left with no real answer. My nuerologist only said it's not MS, nor is he concerned about any other major degenerative disease. But I haven't felt my normal self for 7 months now, and I'm very frustrated. I'm normally a very active person, working out 5 days a week - now, I'm down to 2 if I'm lucky due to being tired all the time. My regular doctor diagnosed me with minor/moderate depression and anxiety two weeks ago and started me on Lexapro (I think that's the name). I hate being on medication - I don't like to even take Advil or Tylenol. That's helped with the anxiety a little - I don't feel like I'm getting worked up as much.

So what am I to do? I've been searching for a long time looking for an answer, and I just can't. I have been stressing myself out drastically worrying about my health, not for me so much, but for my wife and 5 month old son. I want to be there for them, and don't want to have something that will debilitate me or shorten my life.

Geesh, this is long. Sorry, but in a way, it helps to write it all out. The short of it is, I want to know what I'm dealing with. Should I be concerned about ALS at all? Anyone out there have any advice?

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