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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

I too lost my father 4 yrs ago to ALS. At 71 yrs old, it took more than a year for a diagnosis after experiencing pain and numbness in his left hand and arm over a period of several months. The ALS Dept at Emory in Atlanta finally confirmed the diagnosis. After the shock subsided, we set about educating ourselves to the best of our ability in order to insure the best possible care for him. His conditioned worsened very quickly. My Mom promised to take care of him at home until we were unable to provide the level of care that was required. My Mom, brother and I spent thirteen months rotating 24/7 care. In the final months, we had a great deal of support from the local chapter of Hospice. We were all with him when he passed away.

I totally agree with Tip2Mol. She communicates with a great deal of wisdom and understanding. The disease is very cruel - it drains every thread of energy from everyone in the family. Continuing to love and support eachother, treating your father with dignity and respect while giving him the care he needs will bring comfort to you long into the future.
While you give your best to your father, don't forget to take care of yourself and encourage your siblings to do the same. You must be healthy to love and care for your father. Draw on eachothers strength and look to your higher power for guidance and comfort.

Know that there are many of us out here who understand your pain and the endless questions that haunt you everyday. Making everyday count and spending this valuable time together is most important.

We will keep you in our thoughts and prayers.

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