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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Hi,
My dear friend has ALS, newly diagnosed...It seems like in the 2 months since diagnosis he is losing abilities fast....I know some people progress slower than others, but in a 10 day period he can hardly swallow, speech is very forced slurred and and slow, legs are painful and very very weak, one hand is hard to move and overall reflexes have slowed and he cant drive.
We were told Rilutek would slow down progression...does anyone know how long it takes to work. We are still in the denial phase, crying alot, trying to not think about the grave outcome. It is so sad to watch someone deteriorate physically and sometimes it is hard to know the right words.For now He does not plan on using any measures for food or breathing assistance when the time comes, he just wants to go naturally with no assistance. With his breathing not affected but swallowing is very difficult is it a safe guess that he will end up dying of starvation? Anyone with any thoughts, ideas or help, we all would appreciate it as this is new and we just want to do the right things, and be very supportive.
Thank you





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