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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Sorry KC, but let me guess... Here's where I'll put my money:

You've just been diagnosed with Lyme and went to a doctor who claims he can make you better and he can cure ALS. And churches of people are flocking to him and paying lots of money to be healed!:blob_fire

Well unfortunately, the same thing happened to me.. here's how it is. I had arthritis, went to a lyme doc with my dad who had just been diagnosed with ALS. My dad was in pretty good condition when we went to him which gave the Lyme doc ample time to heal him like he was sent from heaven:angel:

Well, after promises from this doctor that after one year, we'll both be cured, and after almost $30,000 later, my dad had only been headed downhill and so was I after not being on arthritis treatment. We tried EVERYTHING! IV antibiotics including rocephin, lots of shots, but my dad didnt get any better and neither did I. We also had to wait in a waiting room for 7 1/2 hours on our last trip there. That was the last straw! Am i alowed to say a doctor's name on this site? If not, IM me if you want to know him. He was a lyme doctor just outside of Philedelphia.

So after one year, we went to another lyme doctor in Hyde Park, NY. He was a very good doctor because he was efficient, didnt charge too much $$, and never gave us any empty promises that my dad would get better. They only hoped to slow the progression of the ALS.

Well, after so much work and effort, my father died 2 months ago after a steady downhill slide. The Lyme stuff did nothing for him. As for me, i am however better than I was with my arthritis, but not perfect.

HOWEVER, I also saw a man cured of ALS. He went to my Lyme support group and he was in a hospital bed when he started getting lyme treatment, and I've known him for almost 2 years now. He turned right around and got almost ENTIRELY better! Lost the feeding tube, was able to eat, walk, and talk! But sadly, after coming this far uphill, he has now turned back around and started going back downhill. His lyme doc now says there's nothing else they could do for him. Even though, he did come back that far!

It's interesting that it almost worked for him though.. another key to his progress uphill was heavy metal treatment.

Write back for any questions. I'm just here still trying to recap everything that just happened to us.

Don't bet your life on Lyme.

mc
Hi KC I fully agree with you. I have not written on here for quite some time, but I have reterned with good news. I was diagnosed with ALS in 2002 and my condition worsened right into 2006. I got down to 110 pounds in January, when I got a feeding tube. In March I nearly suffocated from a mucous plug from double pnumonia. I blacked out and coded before the EMS arrived to revive me. I was in the ICU for two weeks and had a traecheostomy tube put in and was put on a ventilator. I am now up to 165-170 pounds, and just went through two weeks of holistic treaments, and am now able to breath and speak off of the vent.
Mc, I am sorry for your loss. I feel we went to the same Philly doctor for nearly three years, and went through the abx treatment. I now believe lyme is to narrow of a term. I feel this is a very complex combination of different biting insect born diseases, including viruses, parasites, and other micro-organisms. That is why abx alone are not effectve. You need to find a good holistic doctor with a effective patient history to detox and rebiuld your immune system, and then attack the infections individually. This is all very scary, but you must remain possitive and confident that God will guide you in healing. So don't lay down and die. Fight to live as best as you can. The ALS association hasn't made any progress in the disease with 60 years of research, so you have to take it upon yourself to educate yourself to unravel your own combination of infections.

I hope this helps
Jon
[QUOTE=ohio hunter;2557949]Hi KC I fully agree with you. I have not written on here for quite some time, but I have reterned with good news. I was diagnosed with ALS in 2002 and my condition worsened right into 2006. I got down to 110 pounds in January, when I got a feeding tube. In March I nearly suffocated from a mucous plug from double pnumonia. I blacked out and coded before the EMS arrived to revive me. I was in the ICU for two weeks and had a traecheostomy tube put in and was put on a ventilator. I am now up to 165-170 pounds, and just went through two weeks of holistic treaments, and am now able to breath and speak off of the vent.
Mc, I am sorry for your loss. I feel we went to the same Philly doctor for nearly three years, and went through the abx treatment. I now believe lyme is to narrow of a term. I feel this is a very complex combination of different biting insect born diseases, including viruses, parasites, and other micro-organisms. That is why abx alone are not effectve. You need to find a good holistic doctor with a effective patient history to detox and rebiuld your immune system, and then attack the infections individually. This is all very scary, but you must remain possitive and confident that God will guide you in healing. So don't lay down and die. Fight to live as best as you can. The ALS association hasn't made any progress in the disease with 60 years of research, so you have to take it upon yourself to educate yourself to unravel your own combination of infections.

I hope this helps
Jon[/QUOTE]





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