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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Hello everyone. Beginning a few months ago, I've gotten many strange symptoms that are scaring me to death. I've done some research, and I'm still not entirely sure what they could be. I thought perhaps Lupus, and actually did a very similar post on the Lupus board, but it now seems a little less likely.

Here's a list of every symptom I can think of that I have:


-From approximately one year ago, I've had a strange pain in my chest. When I first got it, it was extremely scary but I've gotten used to it. It's a dull pain around the lower half of my left lung. It seems to continue for months at a time, then mysteriously disappear. When it hurts, it also hurts to the touch
-My throat often gets sore
-Almost every major joint and muscle in my body gets very sore. This also comes and goes and sometimes only certain places hurt, its very strange.
-Additionally my body has become very extremely cracky and snappy lately. Almost every joint is extremely cracky and makes a cracking noise at even the slightest movement.
-I don't feel well almost all the time. I feel drowsy often, and am unable to complete an entire day of work without becoming exhausted.
-When standing up from a sitting position, my back cracks loudly, around where my pelvis is.
-My left hip joint is extremely strange. When I walk, it snaps every step I take, and I can feel something moving inside (tendons? The bursa surrounding the joint? No idea...). This does not hurt, however.
-When I lift my arm up above my head, the tendons in my arm snap loudly sometimes.
-Recently, When I twist my wrist around, I can feel the tendons (I think they're tendons) in my arm making a scraping sensation. This also does not hurt, however there's definately some sort of infection in the tendons there.
-(maybe no connection, maybe just dreaming this one...) In the morning when I wake up, my eyes seem very sensitive to the light. If its a bright day out and I got outside, I can barely see anything for a while..
-Concentration problems
-At times nausea, extreme tiredness
-Recently the muscles in my face are tingling a bit.. Mainly in the left side.
-My tendons also feel tight all over my body. Again, none of this hurts when the cracking happens, but there is a general pain in a lot of my joints.
-My heart races at times.
-If I put my left hand on my right elbow and twist my right hand around, I can feel the tendons (or something?) twisting around and scraping around inside. This is also pretty scary ----


Things I DON'T have:
-Butterfly rash, or ANY rash for that matter (probably not Lupus)
-irregularities in blood cell count
-any swelling of any sort
-rheumatoid factor and any signs that could point to rheumatoid arthrytis in my blood
-Bad balance
-No change in weight
-Any mental related problems (just tired a lot...)

Sorry for the long post everyone, but this is something I'm thoroughly worried about.

The sore chest started a year ago, and everything else maybe.. 5 months ago.

Also, I'd like to speak of my current situation:

I've a 22 year old male from Canada who is currently in Tokyo, Japan on a working holiday visa to study. I've been here since last August, and will return to Canada soon (August). While Canada is relatively cold, Tokyo is sub-tropical and is extremely humid and the summer days range from fairly hot to extremely hot. I have gone to the doctor maybe 6 times in Canada about my chest, and approximately 7 times in Japan since all of the above symptoms occured. Blood tests normal. X Rays (of bones in chest, of lungs, of knees, of feet) are always normal. No doctor ever even suggested Lupus or ALS or thought anything of it seemingly. I intend to go to the doctor again upon returning to Canada (it's expensive in Japan and I'm out of money...).

Does this sound like ALS to anyone? I know it doesnt exactly match up with some of the symptoms you read, but everyone has a different experience, right? Has any other person here with ALS has a problem with snappy joints or any of the other things I listed? The snappy joints are especially strange to me, because I can't find any disease with the symptoms of snappy joints, but I find many related to my other diseases (mainly connective tissue diseases and things).





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