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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

Well things are alot worse now pretty much hang on to a thread my dad is so sick & the doc's say he does not have much time left he can no longer speak he is so small & his heart is broken I see how bad he wants to play & hold my 22 month old daughter is only grandchild he loves her so much and she adores him:) My heart hurts i can't say good bye i love him so much i just don't understand this, & my mom is amazing she has kept dad at home this entire time 6 year's now their love is amazing. I can't sleep night-mare's are bad & i've been having panic attacks i just don't know how to feel this can't happen we can't lose him oh this hurts so much.....I'm lost...[/QUOTE]

When my father passed away from ALS in sept of '04 my whole world was turned upside down. It actually still is upside down to be honest. I remember toward the end of his life his whole family was there to say goodbye. It was the worst day of my entire life. There is never any good way to say goodbye. Just make sure that he knows that you love him and be there with him till it is time for him to pass. I feel your pain and can remember his last day like it was just yesterday. My advice is to cry when you need to, get angry if you have it and express yourself. My thoughts are with you.
I just want to say my heart goes out to you. I lost my dad almost 7 years ago...ALS and Picks was awful to deal with. At the time he passed, I had a 3 week old son.

All I can say is take lots of pictures of your child and your father, they will be great to look at later. And hug your dad as often as possible. You'll wanna remember that smell and that feeling for the rest of your life.

I'm so sorry you're going through this. It's great you have your mom with you, this will truly be a bonding experience where you both will need each other.

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