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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


I have posted this also in the MS forum as the symptoms I am feeling are so similar. I looking for some advice please...

Ok here goes...

I have had various health issues over the past 18 months, light headedness, gastro intestinal problems, throat issues.

I had an MRI done 2 years ago due to light headedness – Result was all clear.

I then felt light headed again 15 months later and then 6 months ago I had a Brain CT scan followed by a Brain MRI all again turned out clear. I had read about MS and asked my Neurologist if I have MS and he said in 95% of MRI’s MS shows if your symptomatic and I was possibly showing some symptoms. After the MRI he was happy it was not MS. I also had a huge range of blood tests CBC,s Immunity tests etc. all of which were clear. He ordered a MRI of my Cervical spine and that showed a bulging disc at C4/5 the report says:

[B][I]Bony alignment and marrow signal are normal C4/5 and C5/6 disc spaces are narrowed.
Broad based disc protrusion is seen alog posterior ad left posterolateral margin of C4/5 disc. Left C4/5 neural foramen appears severely narrowed. Suggest correlation with symptoms and clinical findings. Central canal only shows mild narrowing. right C4/5 neural foramen is midly narrowed.
Medial end of right C56 neural foramen is mildly narrowed. Small annular tear seen at posterior margin C5/6 disc.
Small central disc protrusion noted at C6/7 disc[/I][/B]

The concerning thing was the small finger is not affected by C4/5 issues

A month later I kept waking in the night with the left side of my hand feeling totally numb. As the weeks progressed this got worse, then went away for a few weeks then returned again with intensity. The feeling then started creeping up my arms and then across to my right hand and arm. I started getting tingling and prickly feelings in my fingers and arms. When I would go to bed I also started to get tingling in my feet. I also started to get a feeling of a lump in my throat but no lump was seen or detected by an ENT Dr. he put it down to a phenomenon called “Neuralgia”

I had yet another disruption of the bowlels with pain and constipation and so I went back to an Ortho Dr and Neurologist. Because this numbness seemed episodal my Neuro got concerned and said this was all pointing to MS and so ordered more tests again which were:

1) Brainstem evoked Potential
2) Visual evoked potential
3) Somatosensory evoked potential
5) Brain MRI with and without Contrast
6) Cervical Spinal Cord MRI with and without Contrast
7) NCT
8) EMG

Again they all came back normal but the NCT and EMG showed some nerve entrapment and the Neuros report on the NCT/EMG said the following:

Prolonged distal motor latencies of left median and left ulnar nerves may suggest proximal root lesions. Mixed nerve study shows that the latency of median nerve is prolonged compared to that of ulnar nerve. This suggests slowing of conduction over the wrist. Therefore, it provides electrophysiological evidence of left sided carpal tunnel syndrome.

He says the chances of Carpal are about 50% but I dont think it is as I have my arms and legs affected!

The Neurologist again had a meeting with the Senior Radiologist and they both came back and said this is NOT MS as if I was this symptomatic with MS it would be very distinctive on the MRI images and that my Brain and Cervical Spine MRI showed ZERO evidence of any MS, additionally the fact that the Brain Stem tests are normal corroborates the diagnosis – I was told the brain Stem tests are pretty conclusive.

1 week on and my right leg is weakening – it feels like I have exercised my calf muscle and has that weak feeling that you get after you have worked it in the gym. All my muscles feel twitchy and sometimes certain muscles are slightly trembly. Sometimes if I sit on the sofa my right leg feels like it is going to sleep. I am terrified as to what the hell is going on with my body. I am suffering severe feelings of nausea.

I wonder if anyone could give me any thoughts about this please – I am in quite a state as I fear this is MS or ALS

Cheers

Axa
Hi people PLEASE help me and pray for me.

Since I made this post my right leg has got worse and feels real weird and its not weak but feels like I am standing on a nerve. When I sit my foot makes me move it not because of pain but like its all sensitive and I am on a nerve. I am also getting a lot of twitches in my right leg. I ma having twitches on other parts of my body but my right leg seems to be getting the most.

I keep jumping off chairs etc to see if its weak but its not. My reflexes on the knee are normal but I am SOOO scared this is driving me crazy. I am CONVINCED I have ALS. I have 2 beautiful daughters who are toddlers and I think of how life will be for them if I have ALS.

I have also got this weird habit of where I yawn every 10 mins. not because I am tired but its just a yawn. When I yawn I get a feeling of extreme nausea with it that lasts for a few seconds then dissipates?? I read excess yawning can be a central nervous disorder - Oh my GOD this is what ALS is. I am so scared and Its making me cry like a baby.

I am sitting here typing at the table and while I am I can feel my legs twitching. I also feel like my arms are feeling the same kinda nerve weakness as my right leg and my eyelid is twitching very often. This has all happened in the past 2 weeks. My hands are fine and I can type etc and so far I am having no problems with them or walking as I feel fine. My leg just feels weird and kinda weak but more of a kind of nerve pain.

Please give me some advice people I am going out of my head. I am 40 which is the age ALS can start too.





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