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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


I don't know what to say but I wanted you to know that you are not alone, I have very similar symptoms as you and I don't know what it is, all my tests have come back clear, my last MRI showed lesions but they chalked it up to migraines. I have been told by two nuero's they think I could have MS but when I went to the specialist he said he didn't think so since I had a brain tumor(since removed). It's been five years and things are proggresivley getting worse, my hands and arms just started giving out on me, my legs have been in pain for quite a while and I am losing feeling in them more and more as time goes by, I can't feel one leg on another anymore and you know how when you don't shave your legs for a while you can feel the stubble on the other leg and it's scratchy I no longer feel that. I can tell that they are cold but when I put one foot on the other can't feel the coldness. They go numb all the time, there is twitching even in my eyes. I wish you the best on figuring this out. I just wanted you to know I know how frustrating and scary this can be. I don't understand why for some of us it takes so long to get the diagnosis that we need to move on with our lives. My friends have accused me of wanting to have some horrible disease. I don't want that, I want none of this, I want to be better! If not then I want some answers for why my body is failing me. I need that knowledge. I have two kids. I will not give up my quest and niether should you. Good luck. I will say a prayer for you to find the answers you need.





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