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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

[QUOTE=Thnder;4126369]Is this true? Because I have fasciculations and muscle weakness and my neurologist just sent me to see an ALS specialist. He said he doesn't think its ALS but wants to rule it out. He says sometimes one can have fasciculations before they notice any muscle weakness or atrophy.

My fascics started in February, and I'm just noticing the muscle weakness now. Does this sound like ALS? I had a EMG that was negative except for the fasciculations in early September, so I thought I was in the clear, but now I am nervous again. The muscle weakness I have noticed only started about 1 month ago but seems to be progressing.[/QUOTE]

Can I ask how old you are?

When we added muscle weakness to muscle twitching, it becomes a whole new ball game....but what your doctor is describing is SO RARE. Only about 5,000 people get ALS each year, and only a few of those, if any, will start with their first symptom as twitching. Muscle weakness can be caused by so many different reasons. Your doctor just wants to rule out ALS first.

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