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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Blues, I am 39 years old. My fascics started in my upper body but now they are in my calves. The fasciculations in my calves are different than my upper body fascics. My calves sort of move like worms moving under the skin--they are slight and barely noticable, whereas my arms are more noticiable and do it less but more strongly than my calves. I have weakness in my left wrist and elbow and right shoulder, and I think now in my ankles. I also have a few fasciculations in my buttocks and left pectoral. However, I also have pain in the joint areas where the fasciculations occur (although the fascics don't cause pain), which I understand is not a sign of ALS. Is that correct? (But I also heard the joint can slip as the muscle weakens, which could cause pain?) When I press on the joint area or move it wrong it sends a flare of pain. I've had a cervical MRI and then later a lumbar MRI, both of which didn't show anything that would cause the fasciculations.
There was a few skillets piled up on the oven, and although I could lift it with my right arm, it wouldn't budge with my left arm. Also, I just moved a couch with a friend, and it seemed like my left arm didn't have anything to give.
Also, when I chew something thick it seems like my jaw begins to tire out. I know that this is not the normal ALS progression (weakness coming after fascics), which makes me calmer, but I simply can't figure out what it might be. I've had a negative lyme test but I also understand chronic lyme can be unreliable in tests.
I apologize, as my concerns are so minor compared to the challenges many face here everyday.
[QUOTE=Thnder;4126823]Blues, I am 39 years old. My fascics started in my upper body but now they are in my calves. The fasciculations in my calves are different than my upper body fascics. My calves sort of move like worms moving under the skin--they are slight and barely noticable, whereas my arms are more noticiable and do it less but more strongly than my calves. I have weakness in my left wrist and elbow and right shoulder, and I think now in my ankles. I also have a few fasciculations in my buttocks and left pectoral. However, I also have pain in the joint areas where the fasciculations occur (although the fascics don't cause pain), which I understand is not a sign of ALS. Is that correct? (But I also heard the joint can slip as the muscle weakens, which could cause pain?) When I press on the joint area or move it wrong it sends a flare of pain. I've had a cervical MRI and then later a lumbar MRI, both of which didn't show anything that would cause the fasciculations.
There was a few skillets piled up on the oven, and although I could lift it with my right arm, it wouldn't budge with my left arm. Also, I just moved a couch with a friend, and it seemed like my left arm didn't have anything to give.
Also, when I chew something thick it seems like my jaw begins to tire out. I know that this is not the normal ALS progression (weakness coming after fascics), which makes me calmer, but I simply can't figure out what it might be. I've had a negative lyme test but I also understand chronic lyme can be unreliable in tests.
I apologize, as my concerns are so minor compared to the challenges many face here everyday.[/QUOTE]





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