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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

I too had this fear awhile ago as I have muscle twitching all over, when it started it was my right thumb and within weeks thousands all over my body daily. I also had other odd symptoms. Now my twitching comes and goes. I saw many neuro and they all said it is usually obvious upon looking at someone who has ALS and they often dont pass basic neuro tests and they would not pass an EMG if they had twitching all over. These were from very good drs in San Francisco, I even went to an ALS specialist. My tongue also twitched, muscles I didnt know I had twitched.

There are many diseases that can cause weakness and twitching, already ALS is rare, but especially in younger folks (though not unheard of). Also from what I understand, twitching is usually one of the last symptoms

I would get an MRI and lumbar puncture too.

I hope that you have gotten some answers.

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