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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Hello,
Thank goodness for this board, otherwise id be all alone.
I am very terrified that i might have the diagnosis we are all dreading. I am almost 2 months out of surgery for a discectomy, laminectomy on L4/5 in the back. Well.. i am still feeling nerve pain, and have since seen a psysiasist, and neurologist, the physiasist was concerned with clonus of the ankle, the neurologist was not, but was concerned with my reflexes. She calles them brisk, or jumpy, and ordered an mri of the brain. Last week i had a emg,ncv tast done, and the tech said everything looked good, however i still have to see the dr. I am on 300mg of neurontin 3xdaily, as well as muscle relaxers, yet as of thurs i started noticing twiching in my body EVERYWHERE! now this is where i become terrifies of als, unfortunately the pain in my back has created such anxiety and depression, all i can do is think of what this could be until i get the mri done, and get the results. I have a little 2 1/2 yr old at home who needs her mommy, and all i am right now is so depressed and scared, can anybody tell me if twiching is a sign of als? and would the emg/ncv detect it as well, what about the mri? I has a c/t scan done last year for something else, but it came back all clear, would that have showed as well?
Any any advice would help, i am terrified!!!!
[QUOTE=jodi n;4169723]Hello,
Thank goodness for this board, otherwise id be all alone.
I am very terrified that i might have the diagnosis we are all dreading. I am almost 2 months out of surgery for a discectomy, laminectomy on L4/5 in the back. Well.. i am still feeling nerve pain, and have since seen a psysiasist, and neurologist, the physiasist was concerned with clonus of the ankle, the neurologist was not, but was concerned with my reflexes. She calles them brisk, or jumpy, and ordered an mri of the brain. Last week i had a emg,ncv tast done, and the tech said everything looked good, however i still have to see the dr. I am on 300mg of neurontin 3xdaily, as well as muscle relaxers, yet as of thurs i started noticing twiching in my body EVERYWHERE! now this is where i become terrifies of als, unfortunately the pain in my back has created such anxiety and depression, all i can do is think of what this could be until i get the mri done, and get the results. I have a little 2 1/2 yr old at home who needs her mommy, and all i am right now is so depressed and scared, can anybody tell me if twiching is a sign of als? and would the emg/ncv detect it as well, what about the mri? I has a c/t scan done last year for something else, but it came back all clear, would that have showed as well?
Any any advice would help, i am terrified!!!![/QUOTE]
Hi Jodi;
I just came on this site by accident but was glad I did when I saw your terrified note posted here. I was glad to know that I am not alone with this. I have just been diagnosed a few weeks before xmas and have been told that the twitches is what made them finally get onto checking into als and sure enough that's what it was. Ask your surgeon to do ems testing, electrical impulse testing, that will tell pretty much for sure. My regular dr. said that als is the main disease that the twitching happens in. Good luck honey, but please know you are not alone. I leave for Vancouver for a second round of electrical testing, I jokingly call it my shock treatments, though I sure do know this is no joke. I have great support system, friends family, doctors and therapists who have all been in contact with me already. As has the ALS society which is just fabulous. Most of all keep the faith girl. Keep me posted. Gloria remember if God saw you to it He'll see you through it that is what I am living on, though it's very mind boggling and overwhelming some days. One day at a time and learn the serenity prayer.





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