It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


I first off want to extend my greatest well wishes and love to all those suffering with ALS and their family and friends. Ive been suffering from some problems recently and I was wondering if i could get some advice.

About two weeks ago I became very ill. I didnt have much of an apetite and had trouble sleeping. I went to the hospital and they said it was the stomach flu. About 2 days later I woke up to tingling/virbrating sensation all over my body. I tried to go back to sleep but I kept kicking ( like i was playing soccer on my bed) i also started to have muscles twitches up and down my legs. From my thighs all the way to down to my calves. It still comes and goes. Especially during rest and when I'm sitting down. My legs are always moving but i always thought it was nothing. maybe just nerves or RLS. But recently, its been really bad. I'll wake up (from the rare occasions I get to sleep) and my legs are cold and will be moving out of control. I also feel like I dont have control of my legs. Ive noticed that the bones in my legs, feet, arms, hand and knees have been cracking more often too.I also get the twitching on my arms and hands. That also comes and goes. these symptoms are worse at night. My sleep has also been severely effected. I'll wake up out of breath or get jerked out of my sleep. Ive also had a dream where i felt like someone was choking me. I felt like my throat muscles were being compressed. When I eat i get severe back pain, shortness of breath and muscle twitching.I don't have much diffculty swallowing but the breathing part can be challenging at times. My chest gets heavy and i have to breathe in as hard as possibly can. i feel weakness in both of my hand and arms but right now its mostly my left hand that is weak. What really scares me is the body vibrations i get throughout my body, mainly around my spinal area.I sometimes get numbness and twitching lips and side of face. Ive had blood taken at least 5 times in the past 2 weeks.(they were normal) urine tests (normal) and ultrasound and 2 xrays (normal).The only thing my doctor said i was, was dehydrated and needed a good cleaning (sorry too much info) Even so ive still have these symptoms and im really scared. I'm 21. i havent lived yet. Pls give me your thoughts and advice. It would be so greatly appreciated.

My Symptoms
Off and on leg, feet, arm and hand twitching (especially at rest)
Always have the urge to move feet
Vibrating feeling in entire ( alot of times around my spine)
Feels like lost control of calves area in both legs
Joints have been cracking more often
Lower back pain (kidney area)
Diffculty sleeping
Jerked out sleep
Wake up out of sleep, not breathing right
Feels like throat muscles are collapsing ( on 1 occasion)
numb/ twitching lips.
muscle cramps in left leg (went away)
Sometimes it takes effort to talk (chest area, ive been asked to speak up numerous times)
[QUOTE=DeniseAnnette;4737872]I first off want to extend my greatest well wishes and love to all those suffering with ALS and their family and friends. Ive been suffering from some problems recently and I was wondering if i could get some advice.

About two weeks ago I became very ill. I didnt have much of an apetite and had trouble sleeping. I went to the hospital and they said it was the stomach flu. About 2 days later I woke up to tingling/virbrating sensation all over my body. I tried to go back to sleep but I kept kicking ( like i was playing soccer on my bed) i also started to have muscles twitches up and down my legs. From my thighs all the way to down to my calves. It still comes and goes. Especially during rest and when I'm sitting down. My legs are always moving but i always thought it was nothing. maybe just nerves or RLS. But recently, its been really bad. I'll wake up (from the rare occasions I get to sleep) and my legs are cold and will be moving out of control. I also feel like I dont have control of my legs. Ive noticed that the bones in my legs, feet, arms, hand and knees have been cracking more often too.I also get the twitching on my arms and hands. That also comes and goes. these symptoms are worse at night. My sleep has also been severely effected. I'll wake up out of breath or get jerked out of my sleep. Ive also had a dream where i felt like someone was choking me. I felt like my throat muscles were being compressed. When I eat i get severe back pain, shortness of breath and muscle twitching.I don't have much diffculty swallowing but the breathing part can be challenging at times. My chest gets heavy and i have to breathe in as hard as possibly can. i feel weakness in both of my hand and arms but right now its mostly my left hand that is weak. What really scares me is the body vibrations i get throughout my body, mainly around my spinal area.I sometimes get numbness and twitching lips and side of face. Ive had blood taken at least 5 times in the past 2 weeks.(they were normal) urine tests (normal) and ultrasound and 2 xrays (normal).The only thing my doctor said i was, was dehydrated and needed a good cleaning (sorry too much info) Even so ive still have these symptoms and im really scared. I'm 21. i havent lived yet. Pls give me your thoughts and advice. It would be so greatly appreciated.

My Symptoms
Off and on leg, feet, arm and hand twitching (especially at rest)
Always have the urge to move feet
Vibrating feeling in entire ( alot of times around my spine)
Feels like lost control of calves area in both legs
Joints have been cracking more often
Lower back pain (kidney area)
Diffculty sleeping
Jerked out sleep
Wake up out of sleep, not breathing right
Feels like throat muscles are collapsing ( on 1 occasion)
numb/ twitching lips.
muscle cramps in left leg (went away)
Sometimes it takes effort to talk (chest area, ive been asked to speak up numerous times)[/QUOTE]
[QUOTE=DeniseAnnette;4748934]I dont believe that i have hysteria. But thanks for your opinion.
I have been very fatigued for quite some time. I have also noticed that my left forarm is smaller than my right. My left is almost 2 inches smaller around than my right. I have a lot of weakness in my arms as well. i can barely type using my left hand. I'm starting to get really scared. Im seeing a neurologist soon. Hopefully they can pin point something. Thanks again.[/QUOTE]


I really understand you complety.Coz same sympthoms on my body too.Anyway i m in major depression and taking paxil pills.But i can say that clearly my last 4 months was as hell and still same.Coz ALS,depression and paxil pills almost have same sympthoms.Everything mixed each other on my body and in my mind.Coz i cant be sure about my situation.Confused as a crazy.I visited 12 different doctors.Nerologist,Throat department,Psychiatrist and more.Its a so hard situation and pls try to be relax.Yes its so hard but We cant do anything else.I m 29 years old and if i even have Als i really can accept it so calm.I just want my unknown situation ends.Als,depression or any other illness.I really dont care.
Pls check my title in this forum and read my sympthoms.

Greetings from Turkey.





All times are GMT -7. The time now is 06:16 AM.





2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!