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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Pls Help
May 9, 2011
Hello everybody.
I m from Turkey and 29 years old.
I just want some help.

Everything started 4 months ago.I felt numbness on my head and on my right arm for 3 days.Then i went to neorology doctor and she wanted some blood test coz she had doubt about b12.

Well.Blood results said that my b12 vitamine is not enough.Then i had injection for 2 months and my b12 is okay now.
In this time i had alot of twitchs and numbness then these things gone away.I had some throat problem too.Its like a somethings in my throat or somebody chocks me.Then all sympthoms gone for a time.

But it started again.Some twitchs and weakness.They made some blood test and checked my ck.Ck is okay but i couldnt be sure.Visited another nerology doctor and he said that u are in major depression and i started to use paxil.
But this pill made me worse and for being sure i wanted EMG test from them.They made it and everythings okay.No problem in my EMG test.
After it i thought that all is okay now but just in one night like somebody stolen my power from my legs and arms.My knees inside as empty.I have no power on my arms and legs.Or feel like that.I cant manage myself while walking in the street sometimes.But i can carry any heavy things, can run and still powerful.No any losing power but i feel so weak.

Then crazy twitchs started again with cramps.Visited another nerology doctor and blood results are again ok.He said that you are powerful and energic.I asked him that so why do i feel as a dead body? what about cramps and twitchs on my body?He said that coz of depression.

I didnt believe him and visited another doctor and said that i have cramps,twitchs and weakness.He made some tests and said that its depression coz you are so powerfull.

Well.I visited 12 different doctors.Nerology,throat,psychiatrist.All of them said same things.(YOU ARE IN JUST HUGE DEPRESSION)

But i dont belive them.How can it be?I feel like a dead body.I have twitchs but not so strong now.I have cramps but these cramps come and go sometimes.I have problem on my throat.Like a somethings there and chocks me.And on my arms like a fire.They are burning.But my legs and feet so cold.My legs and arms itching as a crazy.

I wrote a letter to Turkish Als community and admin answered me.By the way admin is an eye doctor and als ill person since 1990.He said that dont worry coz you cant be als.But i m still not sure.

So what is that? I really dont understand anything and going to mad slowly slowly.Yes i m in huge depression coz lost my job but a depression can make these sympthoms?

Can ALS be so fast? Can it be ALS if blood results and EMG tests are ok ,can this illness hide itself? What can it be depression or any other illness

I believe in god and even if i have als i can accept it so easy.I just bored my this unknown situation.Just want to be sure whats that?ALS,Depression or any other illness?

Sorry for my poor english.
And thanks for answer already.
Have nice day to all usa
Greetings from Turkey...
Re: Pls Help
May 9, 2011
It's rare for an EMG to miss ALS....I can happen but not often. Numbness, tingling, and weakness can all be neurological. I have MS and have all of those symptoms. I would see if you can get an brain MRI with contrast. Write down your symptoms, how long they last. All of that can be helpful for a doctor. Continue to listen to your body. Yes depression and anxiety can cause many weird symptoms but if you believe there is more....continue to search for answers. Based on your symptoms, I doubt this is ALS.
Re: Pls Help
May 10, 2011
[QUOTE=anxiousme;4750511]It's rare for an EMG to miss ALS....I can happen but not often. Numbness, tingling, and weakness can all be neurological. I have MS and have all of those symptoms. I would see if you can get an brain MRI with contrast. Write down your symptoms, how long they last. All of that can be helpful for a doctor. Continue to listen to your body. Yes depression and anxiety can cause many weird symptoms but if you believe there is more....continue to search for answers. Based on your symptoms, I doubt this is ALS.[/QUOTE]


Hello Anxiousme and thank you for the answer.
I hope god will help all ill people and my all prays with you and with other ill people.

My Family and all doctors say that dont listen your body coz you create problem about your health, its just a depression and so hard.I want to belive them but when als sympthoms start i lose my reality.My half part says that i have ALS,but other part says that you are just in depression.

Funny is that my sympthoms like a playing game with me.For example when my throat getting worse, my twitchs and cramps stop.When twitchs start, my throat getting better.Such a hard situation and it really makes me crazy.
I m bored to going to doctors.Everybody says that you are okay but i cant be sure.

Have a nice day to you.
Greetings from Turkey.





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