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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


It has been almost 2 months since my mom's diagnosis. She was in late stage at the time of her diagnosis and the past few weeks have been very difficult. Her weight had dropped into the low 60's and her frame is now skeletal. She has 2 falls in recent weeks but thankfully has not broken anything. Her current calorie intake per day is under 600 and most of that is due to drinking Ensure or Boost. I am living with her and at night the sound of her breathing is terrible. It is almost impossible for her to have a conversation so now we relay on either her writing things or pointing at what she needs. I look at her and wonder how long this disease will keep her suffering and then feel guilty for hoping she passes soon. There is no quality of life and I only keep hearing it will continue to get worse.





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