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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

[QUOTE=babajojo;4949826]:confused::confused::confused::confused:I am currently undergoing a number of tests which may be related to either mysathia gravis or als. I was admitted to hospital in December 2011 with difficulty swallowing, breathlessness and a slight voice change. Whilst in hospital I had a general MRI to rule out MS, this was clear, also had a modified barrium swallow which came back as mild pharyngeal dysphagia due to unknown cause. I was then discharged from hospital and would have to see a neurologist as out patient for more investigative test.

Since then I have seen a Gastrologist who performed an endoscopy and found some narrowing of the oesophagus and inserted a ballon to stretch. Also seen an ENT who inserted a camera up my nasal passage and down my throat, this test also came back clear. I then saw the neurologist who explained that i was presenting with symptoms typical of als or mysathia gravis. I would have to have more extensive testing to also rule out other neuro conditions.

I then had a more specific MRI which indicated increased signal intensity in the T2 deep white matter which is more prodominant in the motor strip and motor tracks. MRI indicated more marked in each occipito-parietal region adjacent to the lateral ventricles - which is suggestive of ALS. I also had most recently a NCS and EMG at the time of the test the neurophysist who conducted it said he didnt see 'anything nasty' but would have to analyze the results.

Since December I have experienced the following symptoms, swallowing has become increasingly difficult, voice has changed, cramps in left calf and toe, crawling sensation on skin, occasional twitching of eyelids and legs and feeling of heaviness from knees down and very tired.

I am hopeful that someone can help and shed some light to all this for me, as you can understand it is and has been very frustrating not knowing what is going on. Are these symptoms / test results that of ALS or something else. Any feedback would be greatly appreciated, I'm worried sick that is ALS .Thanks Jo[/QUOTE]
Hi just want to given an update and get some feed back , Went back to my Docoe on April 18th May 2012 and was advised that EMG and NCS showed that I had tongue wasting and twiching and weakness in chin and neck and that this and all the other results confirmed that I have ALS, it felt like the ground had just been pull from underneith me.
I was told 3 to 5 yrs depending on progess, I still have problems swallowing, discomfort in throat, voice is still deep ,twitching has increased to all over body and cramps in both calfs, very weak tried and have just start to cough after food for no real reason.

How fast does the ugly disease progress I feel so angry and sad at the same time and don't know what to do first....please help

Thank for reading my post.

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