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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


First time post
Mar 14, 2014
Hello everyone, I'm new to the forum yet I've been living with symptoms of als for 3 years. I haven't been diagnosed. My initial Neuro specialist had "strong suspicion of motor neuron disease" for me. I went to an als specialist at Columbia university in NYC and was basically blown off. I believe because my symptoms weren't exaggerated enough for him. Yet he couldn't tell me if I did or didn't have it. He referred me back to the first doctor I had seen at north shore university. 3 years....no diagnosis. Thinking about getting a muscle biopsy. My first symptoms were hand cramping upon turning a key. Problems buttoning shirt. Items slipping out of my hand when walking short distances. Inability to speak clearly. Ankle stiffness. Now leg heaviness. And plenty of muscle atrophy. Any suggestions?
Re: First time post
Aug 23, 2014
[QUOTE=Busterbrown1;5274261]Hello everyone, I'm new to the forum yet I've been living with symptoms of als for 3 years. I haven't been diagnosed. My initial Neuro specialist had "strong suspicion of motor neuron disease" for me. I went to an als specialist at Columbia university in NYC and was basically blown off. I believe because my symptoms weren't exaggerated enough for him. Yet he couldn't tell me if I did or didn't have it. He referred me back to the first doctor I had seen at north shore university. 3 years....no diagnosis. Thinking about getting a muscle biopsy. My first symptoms were hand cramping upon turning a key. Problems buttoning shirt. Items slipping out of my hand when walking short distances. Inability to speak clearly. Ankle stiffness. Now leg heaviness. And plenty of muscle atrophy. Any suggestions?[/QUOTE]

go to als center in stonybrook i go there often i was diagnosed last october, i have also been to columbia and beth israel in nyc...
good luck
glenn





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