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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

Respiratory Onset ALS

Does anyone have any experience with respiratory onset als? it is the rarest of the forms (limb onset, bulbar onset and then respiratory) and comprises only
2-3 percent of all ALS patients. I am specifically interested in rate of decline in pulmonary symptoms and invasive ventilatory experiences from patient and caregivers.

Thank you!

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