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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Sound like ALS?
Aug 28, 2014
Symptoms I been having. ..

*Weakness in arms and legs
*Pain in both legs and arm, worse when walking/working
Also in my feet.
* Frequent bladder
*Random muscle twitching all over the body, expecially feet
*Eye sight slightly worse (need glasses now)

I went to the doctor for this twice, first time I seen a neurologists who gave me an MRI of my brain and spine, because I was worried about MS and everything came back fine. I brought up ALS and he laughed before I could ask about it and said I don't have it but then again my symptoms weren't as bad, minor legs and arms weakness and twitching thumb. He said it could be anxiety and had a case with somebody who could barely walk because of his anxiety and didn't walk again til he had a talk with him about his life. I doubt this is anxiety tho because this morning before work I was the usual weak legs and arms feel and when I was at work walking all day my legs started hurting with pain since I got off but hey who knows..

Second doctor I saw was just at a regular clinic and he did blood work and it came back fine beside that my Vit D level was at 7 which he had the nurse call me and immediately gave a prescription over the phone for V2 vitamin 10,000unit pills and been working on that. Anybody know if my symptoms sound like a legit cause of the vitamin d deficiency? Could it really cause pain and muscle twitching?
Re: Sound like ALS?
Aug 29, 2014
It could be anxiety. It is possible for all the symptoms you describe to be caused by anxiety. The mind is a powerful force. Vitamin D deficiencies can cause muscle weakness and pain. A combination of anxiety and Vit D deficiency seem to explain your symptoms.

ALS is a disease of the motor neurons, sensory issues such as pain are typically not a part of the picture. Also, frequent bladder and eyesight issues are not symptoms of ALS, so your problem does not seem to be ALS.
Re: Sound like ALS?
Aug 29, 2014
ALS is a disease of exclusion, i had 50 different tests before my als diagnosis last october. weakness hit me in my arms/hands, my left arm is unusable at this point in time. i saw multiple experts hoping to hear something else.
i have no pain just weakness. i wish you luck get multiple opinions...
glenn
Re: Sound like ALS?
Aug 29, 2014
[QUOTE=glennxyz;5313426]ALS is a disease of exclusion, i had 50 different tests before my als diagnosis last october. weakness hit me in my arms/hands, my left arm is unusable at this point in time. i saw multiple experts hoping to hear something else.
i have no pain just weakness. i wish you luck get multiple opinions...
glenn[/QUOTE]


Can you explain what you mean by weakness? On ALS boards they keep saying ALS weakness is not being able to pick up something, not just feeling weak. Is this true?
Re: Sound like ALS?
Aug 29, 2014
[QUOTE=alid1988;5313437]So all your limbs don't go weak at once in ALS?[/QUOTE]

I've never heard of that. Weakness typically starts distally like in a single hand or foot (although occasionally proximal muscles are initially involved)and is relentlessly progressive.it is also clinical weakness, measurable by any competent neurologist. Other hallmarks of ALS are pathologically brisk reflexes and muscle wasting. It sounds like you showed none of these on exam by a neurologist, so ALS is very, very unlikely. Fatigue like muscle burning after a workout, and pain point away from ALS.

if you really must, you could push for an emg from an ALS specialist neurologist to help put your mind at ease.





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