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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


I have been having some issues over the last few years that have been building to almost a panic in my head.

My story... I had a disc herniation 6 years ago at C6/C7 and the resulting disc fusion surgery was very successful. The pain and numbness I had in my left arm was almost immediately relieved. Awesome!

About 2.5 years ago I started having walking balance type issues. Just a lack of confidence in my gait. I have never fallen. About 6 months later, I started getting extremely cold burning spots (softball size) in the same spot on my right arm/elbow forearm and right calf. These sensations (gait and cold spots) were usually there but would come and go at first but are very persistent now. The doctor sent me to a neurologist who did physical therapy and ultimately an MRI (brain and spine with dye) which revealed another herniation with pressure on the spine at C5/C6. In the mean time, a warm spot developed on my left calf and numb/warm spot on my left back shoulder.

I had surgery approx. 3 months ago (successful according to surgeon and xrays) but my symptoms are even worse now. And, the cold spots and tingling are popping up briefly in new places every now and are still prevalent in the places mentioned above. Furthermore, I now have some leg and arm pain with some occasional twitching and clumsiness.

I expected the surgery to be the answer but I have so much anxiety now. I wonder if the cervical issue was not the real problem. Perhaps I have ALS. I just visited the neurologist and she did some basic tests, reflex (no real reflex in arms, #3 on right knee and #2 on left knee, Babinski (normal), standing and walking tests, strength tests, and ultimately stated that I did not have ALS. She is fairly positive its related to my cervical issues and surgeries.

I just cant help but wonder if she is missing something as it relates to ALS. I would appreciate your thoughts and/or advice.
I thought I would provide an update on my situation.

Because my symptoms were persisting and getting worse, especially the shoulder blade numbness/pain with fasciculation's in the left arm. I decided to return to the neurologist. She performed another MRI and Cat Scan with dye which indicated that the C5/C6 artificial disc was placed correctly. She performed some basic neuro tests again; strength, reflex, walking, toe standing, Babinski, etc., and ultimately stated that I have slightly elevated reflex on the right knee (with no reverberations), but other than that, everything seemed OK. She thinks that I am still recovering from surgery and that my symptoms are normal for someone diagnosed with Cervical Spondylitis w/Myelopathy.

As stated many times in these forums, you must trust your doctors. Although I have made myself a wreck with my symptoms, I am going to try and trust that advice.





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