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Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1 2 3 Showing 1 - 20 of 59 for als end stage. (0.004 seconds)

... end stage als what to expect (0 replies)
... Hi, I was am new to these boards but I have dealt with ALS. My father passed away a little over 3 years ago from ALS at age 61. Pretty much everyone progresses at different rates, but usually ALS patients pass away from the disease 18 to 24 months after been diagnosed. ... (17 replies)
Dec 21, 2013
... refused feeding tube, cannot, walk, talk, barely move, is incontinent. Well, to me she is near the end stages of life. ... (16 replies)

... I would like to hear from anyone who has had experience with an ALS patient on the ventilator. My father had ALS and he did not choose to go on the vent. My mother in law was diagnosed with ALS ten years ago and has been on the ventilator for the last eight years. ... (17 replies)
At my wits end!
Mar 30, 2012
... My brother was diagnosed with Sporadic ALS exactly five years ago. Once he got his diagnoses it wasn't a week before he had to leave his job. He was an eletrician and could no longer grip his tools. ... (4 replies)
... We too struggled w/ "misdiagnosis"~~My father-in-law had bulbar onset but ideas were raised of stroke and other possibilities. When the ALS didn't progress as rapidly as initially expected, one MD said it was possibly PMA: Progressive Muscular Atrophy. Unfortunately same ultimate outcome but people w/ this condition can expect a slightly better prognosis. Never give up... (21 replies)
... thank u for your words, my mom also cares for my dad at home, he is so mad he says he doesn't want to leave usand worries about my mom they've been together for 33 years since they were teenagers. it hurts to hear my dad say that and i also feel guilty because i have a 16 month old baby girl that my dad can't even touch with his hand, and i know how much he wanted a... (21 replies)
... Tammie ~ I am so sorry for you. My husband and I are in the same boat. His dad is nearing the end of his struggle w/ ALS. He was diagnosed in April 06, although he had symptoms for at least a yr and a half prior. We all thought that maybe he'd had a stroke the way his speech was beginning to blur. His symptoms appeared within a month of beginning a course of statin drugs... (21 replies)
... symptom of end stage ALS. The dr has now determined that the original diagnosis of nueropathy was wrong, and that, in fact, he has ALS. ... (0 replies)
... My uncle started showing signs of ALS over 9 years ago. I remember I was staying with them when he first started showing. ... (17 replies)
... I'm terribly sorry for you and your father. There is nothing anyone can say to prepare you for this disease. I lost my Grandfather to ALS and my Mother has been suffering with ALS for approximately a year now. ... (17 replies)
... your spirits up and remain hopeful, but if you put all your confidence in finding some other diagnosis, you may be disappointed. It is rare to find out that and ALS diagnosis is actually something else, even though it does happen. I really hope for your sake and your family's sake, that you are some of the lucky ones! ... (21 replies)
... i dont see any posts in a while. i hope your well. my dad is 59 and was diagnosed with als only in may. he has symptoms only a few months prioir and they treated him for acid reflux. he has bolbar als which is an extremely fast progressing form. ... (17 replies)
... theorizes that ALS could be the end stage of Lyme Disease. This is due to the fact that many ALS signs and symptoms exactly mirror the symptoms of Lyme Disease. ... (13 replies)
... Hello, I am so sorry to hear about your father. My mother passed away with ALS 9 years ago. I still miss her! ... (17 replies)
... My mothers doctor has given her sleep aids and nothing helps..i know in the end stages they have terrible nightmares and muscle spasams but my mom fell in early sept. and has a spinal injury, she is totally paralized from the chest down. ... (17 replies)
... My friend passed away in the early hours of Wednesday morning. He'd had ALS for 7 1/2 years. We are sad, but at the same time I am so glad that his struggle is over. He hung on for his girls and his wife as long as he could, but the human body is only built to take just so much. They let us keep him sedated and easy at the end, and it was very quiet and peaceful. I know that... (21 replies)
... Dear Tammie, I am so sorry for all this you, your dad and family are going through. My mom had ALS and lasted about 7 years from time of diagnosis to the end. It is so very hard for all involved. ... (21 replies)
Dec 19, 2013
... Hello simoncat1...I understand, as I am expected to be the "rock" in my family. Please know that you can come here to express your feelings and feel "cloaked" in the support of those of us who care. As for your SIL, yes she must state her wishes (explicitly) in writing and have them legally witnessed, including the DNR (explicitly). Regarding her desire to not be "end... (16 replies)
... Are you all aware that ALS/Lou Gehrigs disease can have Chronic Lyme Disease as the underlying cause? (17 replies)

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