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Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1 Showing 1 - 20 of 28 for als life expectancy. (0.002 seconds)

... but hope for the best. I'm asking for anyone who has had a similar experience about the life expectancy at this point. I know there are many factors that can prolong this, but I just need any figure to start plan around. ... (17 replies)
Life expectancy
Jul 1, 2006
... life expectancy as a rule is 2 to 5 years after diagnosis. ... (7 replies)
Life expectancy
Jun 15, 2006
... Hi, life expectancy is 2-5yrs, my partner is now in her sixth year of ALS, she talks to many pals on-line in which a majority have had ALS over 10-28 years so there is hope. Good luck djs (7 replies)

... My uncle started showing signs of ALS over 9 years ago. I remember I was staying with them when he first started showing. ... (17 replies)
... I'm terribly sorry for you and your father. There is nothing anyone can say to prepare you for this disease. I lost my Grandfather to ALS and my Mother has been suffering with ALS for approximately a year now. ... (17 replies)
... Hello, I am so sorry to hear about your father. My mother passed away with ALS 9 years ago. I still miss her! ... (17 replies)
... Hi, I was am new to these boards but I have dealt with ALS. My father passed away a little over 3 years ago from ALS at age 61. Pretty much everyone progresses at different rates, but usually ALS patients pass away from the disease 18 to 24 months after been diagnosed. ... (17 replies)
... I would like to hear from anyone who has had experience with an ALS patient on the ventilator. My father had ALS and he did not choose to go on the vent. My mother in law was diagnosed with ALS ten years ago and has been on the ventilator for the last eight years. ... (17 replies)
... i dont see any posts in a while. i hope your well. my dad is 59 and was diagnosed with als only in may. he has symptoms only a few months prioir and they treated him for acid reflux. he has bolbar als which is an extremely fast progressing form. ... (17 replies)
Life expectancy
Jun 12, 2006
... Does anyone know how what the life expectancy is for someone diagnosed with ALS and who has started to decline in health. Speech is going rapidly. ... (7 replies)
... Are you all aware that ALS/Lou Gehrigs disease can have Chronic Lyme Disease as the underlying cause? (17 replies)
... My mother has progressive als..she has gone from walking and talking in august to bedridden and a prisoner in her own body now...very sad, and i can relate to the sleep issue..what do you do? My mothers doctor has given her sleep aids and nothing helps..i know in the end stages they have terrible nightmares and muscle spasams but my mom fell in early sept. and has a spinal... (17 replies)
... Some people really do stick around for a while.. I don't know if that's a good thing or a bad thing. A friend of mine's mom was diagnosed when we were in elementary school. We're in our nearly mid 30's now, and she's still alive. Another friend's dad was diagnosed and died w/in a couple of years. You just never know. It's all so mysterious. (17 replies)
... I just read the various posts concerning Fathers with ALS. Interestly enough, my brother who is 50 years old was diagnosed in 2004 and is still alive. The disease has progressed slowly taking away his ability to move anything but his eye lids, one eyebrow, a finger and a couple of toes, his tongue, and very limited movement with his jaws; he has been on a ventilator a year... (17 replies)
... this dosent go on forever for the person with als. but it seems to for those who have loved the person and watched them die a little more each day. but you are right. ENJOY EACH DAY. EVEN THE TOUGH ONES!! as the days and months go by, there will be more and more tough ones and fewer and fewer good ones. please enjoy the final days and weeks no matter how tough for either of... (17 replies)
... my dad was a vibrant full of life man who loved to be a big shot. he was reduced to a 130 pound skeleton or shell that had a thin layer of skin draped over him. ... (17 replies)
Oct 10, 2009
... My Father in Law is 75 and was diagnosed with ALS in May 2009. His symptoms had slowed and he hasn't progressed a lot sonce May. ... (1 replies)
... This is the most painful thing I've ever had to experience. My father died of ALS just 3 weeks after being diagnosed. I don't understand... I saw him for Thanksgiving and he was fine. The dr. ... (0 replies)
... My grandfather passed away in 2003. We had about 2 and a half years with him from the time he was diagnosed until the time he passed away. He was actually on his way home from a doctors appointment when he stopped breathing after the doctor told him he was doing fine. A major thing they told my grandma was to always always always check his nail beds. As long as they were still... (17 replies)
... hey thanks for the concern. all is going as best it can be here. my dad is starting to show more progressive signs, but he is in good spirits. Has never been depressed yet or angry, unlike myself and mom. The toughest part is at night when he sleeps in only 2 hours stretches and needs our help at those times. Just doing the best we can. (17 replies)

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