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Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1 2 3 Showing 41 - 55 of 55 for end of life als. (0.014 seconds)

... I am so sorry to hear about your mother. If she has decided to not do any life prolonging measures I would suggest finding Hospice care. My mother passed away on May 23rd so she lasted almost 3 months to the day of diagnosis. ... (5 replies)
At my wits end!
Sep 1, 2011
... d I could help...Please don't get discouraged about no one posting a response. Just ask it again at another time. For some reason this thread doesn't get a lot of dialog going. I have a feeling that it is just to difficult for the patients dealing with the disease. ... (4 replies)
... Personally, I would move home as soon as possible. Don't wait. I lived 2 hours away from them and couldn't get up to their house as much as I wanted to because of school and only being 15. ... (17 replies)

... All I can say is take lots of pictures of your child and your father, they will be great to look at later. And hug your dad as often as possible. ... (7 replies)
... hing to try an speak and no one understands you and you have to repeat dont want your mom or dad having to struggle with that.. but affection, alot of it would be best to remind them they are loved since they cant reach out for it physically or ask for it. ... (21 replies)
... Hello. I am new at this website. My mother was diagnosed with ALS in 1999. She had been ill for some time but it was difficult discovering what she had. I hope I can answer some questions. ... (4 replies)
My Fathar...
Mar 29, 2004
... This is the first time I am going to really go into all of this. I know anybody who would be reading this has had someone in their lives suffer or die of ALS. But a little backing info on the whole situation. I am 23 years old. My father is 43, soon to be 44 this year. My mother is 42. ... (2 replies)
... For me it never has,It does slow down after a while but it never really ends. I Lost my Dad to ALS in Jan. 1991.. It's been 13 and a half yrs now and I still feel the anger and sadness as if it just happened. I Miss him more then words can say. ... (3 replies)
Please help
Oct 1, 2008
... My husband died of ALS 8 years ago. His symptoms started with twitching in his back and then down both arms and before you know it, all over. ... (26 replies)
... HI I have fibromyalgia as well as ALS. Even before I got to what the rheumatologist said I was thinking you may have fibro..Look back at the first part of your message about all of the weight loss, work outs and extra working you did.That could have been enough to trigger fibro. ... (6 replies)
... I am sorry to hear you are having so much trouble. It sounds like when I first got married. I did not have all of your troubles but, I have been sick and we have had deaths in my family and now I have ALS like symptoms but Dr. told me it is not that. ... (6 replies)
Thank-you all
Jul 30, 2005
... Sadly, the end will come sooner or later as you know. The breathing and feeding assistance do prolong life to a degree at the cost of increased dependance. Some patients choose this and that's fine. Some patients choose to refuse these measures and that is fine for them. ... (3 replies)
... Update, my mom's status remains about the same. arm paralysis with some minimal use of her legs. Her balance is pretty off. Her speech has changed a little, though she can still talk and swallow. ... (12 replies)
... my dad has als, and he is going downhill fast. what began as numbness in his neck has changed his life forever. ... (6 replies)
... aerobics, planned a wedding and worked full time plus waitressed on Saturdays. I was married in June and came home from my honeymoon on June 22nd. The last week of my honeymoon I began having stomach pains and loose stools. ... (6 replies)

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