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Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1 2 3 4 5 6 7 Showing 1 - 20 of 134 for onset als. (0.002 seconds)


... Does anyone have any experience with respiratory onset als? ... (0 replies)
Bulbar Onset ALS
Feb 16, 2016
... Two neurologists have diagnosed me with bulbar onset ALS. Am heading to Mayo Clinic soon for one more opinion. Symptoms started very slowly January 2013. ... (1 replies)
... I'm definitely scared now about bulbar onset ALS and it is reeking havoc on my mind and probably just making the situation worse. ... (2 replies)

... e symptoms usually happen in people diganosed with the bulbar onset. Sometimes you will get those symptoms "later" in the disease if you were diagnosed with Linb onset ALS. My father just recently passed away from limb onset ALS. He also was taking lipitor and had the same symptoms you describe. ... (2 replies)
Bulbar ALS
Sep 1, 2004
... Bulbar then progresses to other parts of body just like limb onset can do. ... (4 replies)
ALS or...?
Jan 10, 2020
... Case closed I went to my doctor today and he performed a grip strength test for me and have a result for completely fine muscle strength in my fingers and arms My twitching is most likely the result of stress I do noticed there’s some twitching inside my throat (like something is jumping inside it) no problem with swallowing nor speaking (it fade away from swallowing... (6 replies)
... I am 69 and just diagnosed with Bulbar als.... I am and so is my whole family reserching diet concerns, as well as vitamins, minerals and ways to detoxify the body. The doctors are of no help. thanks god for friends andmy son (5 replies)
... That's what I was wondering. Is slurred speech usually the 1st sign of bulbar onset ALS? ... (6 replies)
... have a shooting pain that comes out of the blue many times a day. On top of all of this, my neck has been hurting really bad, and I am hoping that it is not an ALS symptom because I have read that people with ALS can find it difficult to hold their head up. I am really scared to death. ... (6 replies)
... I am sorry to hear of this new diagnoses. My father passsed away last year from Limb onset ALS. He lived with ALS for 22 months after his diagnoses. He had symptoms for much longer though. Like your father, his symptoms started in his legs and also his feet. ... (3 replies)
... can anyone tell me the typical prognosis for a person diagnosed with bulbar onset als? ... (5 replies)
My mom has als
Sep 6, 2010
... Breathing problems occur with bulbar onset als. Does she also have trouble swallowing or changes in her speech? ... (1 replies)
... people's stories I went into panic mode. By the way, I'm only 26 years old and I have always been healthy up to this point. Also, I read somewhere that bulbar onset symptoms almost ALWAYS start out with speech difficulties first. I don't know if I mentioned in the previous post but this all came on sudden as well. ... (2 replies)
... I'm in the same boat that you are - my mother was diagnosed with late stage bulbar onset ALS on 3-16-2012. Hospice started on 3-19-12. 24/7 in home care began 1 month ago. My mother does not want any life saving measures taken, hence no feeding tube, oxygen, etc. Her DNR document is on the fridge. Mother works to get down what she is able to "eat" at this point (from a... (5 replies)
... I just turned 49 in December, and have been having strange symptoms in my tongue and throat, plus on/off labored breathing over the past 2 months. Can someone help me with some of the initial symptoms of bulbar-onset ALS? If the breathing is effected first, is it an on/off progression, that is, once the labored breathing begins, will it stay labored due to the muscle... (6 replies)
ALS onset???
Mar 26, 2007
... I'm a seemingly healthy 36 year old male and I'm scared to death that I may be exhibiting the onset of ALS. About 4 years ago I was having some trouble swallowing on a regular basis. ... (3 replies)
... I work as a caregiver to ALS patients in Germany. ... (8 replies)
VikingLady
Jan 27, 2016
... I am female, 71, reasonably healthy for my age. My 3rd and 4th neurologists have diagnosed me with probable bulbar onset ALS. Last neurologist is a specialist in ALS diagnosis and treatment in Lexington KY. ... (0 replies)
... Bulbar onset is the rarest form of a very rare disease. Bulbar onset in males is even more rare. ... (13 replies)
Scared of ALS
Apr 22, 2006
... I am experiencing some problems that I am worried could be the onset of ALS. over the last 3 months i have been experiencing pain in my left calf while walking. I am getting cold sensations down both legs. ... (2 replies)




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