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Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1 2 3 4 Showing 1 - 20 of 85 for onset bulbar. (0.002 seconds)


... Does anyone have any experience with respiratory onset als? ... (0 replies)
Bulbar ALS
Sep 1, 2004
... Bulbar then progresses to other parts of body just like limb onset can do. ... (4 replies)
... Can bulbar palsy begin in the lip? ... (3 replies)

Bulbar Onset ALS
Feb 16, 2016
... Two neurologists have diagnosed me with bulbar onset ALS. Am heading to Mayo Clinic soon for one more opinion. Symptoms started very slowly January 2013. ... (1 replies)
... I'm definitely scared now about bulbar onset ALS and it is reeking havoc on my mind and probably just making the situation worse. ... (2 replies)
... Hi, I would like to thank you in advance for reading my thread today. I am a 37 year old female and 15 days ago I woke up with a very tense, stiff tongue. I would compare it to the natural reaction your jaw has when you go outside and it feels cold. It tenses up and my tongue pushed to the roof of my mouth, putting lots of tension on the frenulum. No matter what I... (1 replies)
... I am 69 and just diagnosed with Bulbar als.... I am and so is my whole family reserching diet concerns, as well as vitamins, minerals and ways to detoxify the body. The doctors are of no help. ... (5 replies)
... He has lost a lot of weight in the past year, and he tires very easily. I should point out that prior to the onset of his symptoms over a year ago, he was healthy, vivacious, and robust. He looked and acted a good 15 years younger than his chronological age. ... (2 replies)
... earing people's stories I went into panic mode. By the way, I'm only 26 years old and I have always been healthy up to this point. Also, I read somewhere that bulbar onset symptoms almost ALWAYS start out with speech difficulties first. I don't know if I mentioned in the previous post but this all came on sudden as well. ... (2 replies)
... My mother's ALS was bulbar onset. She did not experience any of the symptoms you have. ... (3 replies)
... I'm in the same boat that you are - my mother was diagnosed with late stage bulbar onset ALS on 3-16-2012. Hospice started on 3-19-12. 24/7 in home care began 1 month ago. My mother does not want any life saving measures taken, hence no feeding tube, oxygen, etc. Her DNR document is on the fridge. Mother works to get down what she is able to "eat" at this point (from a... (5 replies)
... My mother was diagnosed with Bulbar onset March 2012. At that point she was in late stage. As we look back on it now we think she started the initial symptoms about 2 years ago. ... (5 replies)
... As to your question, I don't know about bulbar onset. I wish I could help. Please, please don't feel used. I doubt ANYBODY meant to do this. This site is not for vindictive people. ... (6 replies)
... can anyone tell me the typical prognosis for a person diagnosed with bulbar onset als? ... (5 replies)
... That's what I was wondering. Is slurred speech usually the 1st sign of bulbar onset ALS? ... (6 replies)
... I just turned 49 in December, and have been having strange symptoms in my tongue and throat, plus on/off labored breathing over the past 2 months. Can someone help me with some of the initial symptoms of bulbar-onset ALS? If the breathing is effected first, is it an on/off progression, that is, once the labored breathing begins, will it stay labored due to the muscle... (6 replies)
Bulbar ALS
Sep 2, 2004
... I personally had limb onset, I am most certain bulbar onset doesn't consist of a sore throat :) (4 replies)
... I am a man aged 50 and I am VERY worried I have early bulbar onset, can anyone help me? ... (2 replies)
... Sorry to hear about your symptoms. I am well versed in ALS, but not as well at Bulbar. Bulbar is the least common of a very rare disease, especially if no family history is involved. ... (1 replies)
... It's seems like to me!!!! I was dianoised in sept, but couldn't talk since may. I went to a ent first,then to a neurogoist, and my left leg and left hands hurts. I am know wearing a thing on my leg. I am on oxygen at night. I am working out of baylor in texas. (1 replies)




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