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Alzheimer's Disease & Dementia Message Board


Alzheimer's Disease & Dementia Board Index


Hi Paul - Hi Tim - Thank you for your very thoughtful expressions. My DSD (dear stepdad) is the loved one in my family who is suffering (Frontal Temporal Lobe Dementia). He is not in the last stages, but I would say - I'm in the middle of this journey. He had a stroke this summer that we thought was going to be the end of him, but he rallied and is recovering from the effects of the stroke.

I had a three hour intensive meeting today with my stepdad, my mom, my oldest sister and a social worker who specializes in helping families navigate the tricky waters of appropriate care. As I sat there and participated in this meeting - the first of its kind for our family - it took me back through the last two years we've been dealing with this disease and the journey it has taken us on.

I agree wholeheartedly with you Paul. We do the best we can, and then there are no regrets. As I sat there today and reflected on all that our family has been through I also was reminded how deeply I love my stepdad and would / will do anything I can for him and his care. He and my mom made financial decisions over their lifetimes that have not landed them in the best financial position at this stage in their lives, but thankfully my sister and I have resources to help them and I feel good about doing that - along with being the main "go to" person in my family. It can be so exhausting - I had to come home and sleep for awhile after that 3 hour meeting - but - it is what it is. We get some rest - and we get up and face it again. For those we love. For those who have been there for us. I am saying a prayer for you tonight Paul & Tim as you are facing the last stage of this disease which showed up in your life as an uninvited guest. Peace to you :angel:





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