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This is my first posting and I thought I'd share my story. I've been lurking on this board for months reading everyone else's story as a source of hope.

I've been tired for years and have had countless labs done always coming back normal. My iron and CBC always tested normal. Finally in February 2016, someone had the thought to check my ferritin which came in at 7. I supplemented with iron pills for a few months and got my ferritin up to 50 by July. I did start feeling somewhat better by then and many of my low ferritin related symptoms had ceased. No more headaches, hair stopped falling out, no more rapid heartbeat or shortness of breath, and the brain fog lifted a bit. I did start having digestive issues, though, so I stopped the iron for a while. By December 2016 I was back to heart palpitations, constant brain fog, hair loss and shortness of breath. CBC/hemo totally healthy, but ferritin back down to 18. In January 2017 I did a series of 5 Venofer infusions over the course of 3 weeks. It's now been 7 weeks since my last infusion. Ferritin is up to a whopping 186 now! Unfortunately, I haven't seen the vast improvements others have. I know everyone is different, and maybe my body just needs more time. My hair loss seems to have slowed again, my heart palpitations and shortness of breath have improved again, but I still battle dizziness, blurred vision, and brain fog on a near daily basis. I'm becoming so depressed.

My low ferritin seems to be from heavy periods and a vegetarian diet that I gave up 18 months ago already (I went vegetarian in the first place to see if it would help my bad acne and constant fatigue since I was told iron wasn't my issue at that time). I started on birth control pills again after a 4 year hiatus to control the periods. Thyroid (full panel, not just TSH), B12, and all the other usual suspects test normal.

I started walking again on a daily basis a month ago to get the blood moving, so this is a good thing. I had stopped walking last November when I started feeling so awful again.

Did anyone else out there struggle with brain fog? Did anyone else just need some extra time for the infusions to kick in? I can't fully describe how this has impacted my life in such a negative way and am just digging for any hope.
HI there Foggy,

Are you sure that your dizziness, blurred vision and brain fog isn't from something else entirely and not your iron, I was thinking maybe low blood sugar or something. Like if you don't eat or if you don't eat enough, sometimes it could be hypoglycemia.

My cbc has always come back with normal Hgb, but I had all the symptoms of anemia, it wasn't until I saw a new DR who said did anyone ever check your Iron levels? It was then that my ferritin came back at a 12. Like you, exhausted, hair falling out, the whole 9. Since then I have been taking the iron supplements which I hate more than anything. My stomach has never felt so bad. I also suffer with really bad heavy menstrual cycles and was put on birth control pills too. Like everyone says it will take years to get ferritin back up to 100 so I will ask my DR about infusions when i see him in April. I am ready to put an end to this now. I can't believe how common low iron is. I never would of thought it was.

That is awesome that your ferritin went up to 186! Did you have any side effects to the Venofer and how long did each infusion take? I wish I could answer more of your questions but I haven't had infusions yet but a lot of people do say it takes time to kick in and for symptoms to disappear completely. But your on the right track and its coming, that is the beauty of it!

I do get brain fog at times, but I am also at the age of peri menopause and wonder if its from that or the low iron, I have no idea, but I do get it from time to time and its very frustrating to be talking to someone and all of a sudden you can't think of the right word you want to say or something. Dizziness I don't get that often and blurred vision I do get when I don't eat and my sugar is low.

Walking is so healthy and is very good for you, I am going to start once the warm weather comes if it ever does!





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