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Hey fellow anemics -

I just had my first IV Iron Infusion and it did not go well. I became short of breath, nauseated, weak, flushed... just all around horrible feeling. But of course I have been really hoping that this would be the answer after months of severe anemia. So we stopped the infusion for a while until I felt better and when we restarted it we went much slower. But this happened several times. Then, both of my hands swelled up like balloons! I was there for 10 hours but we finally got most of it in. (And I've been sick pretty much all night, finally starting to get back to normal).

Here's my question - has anyone else experienced anything like this? I am supposed to go back for at least 2 more doses and I just don't know if I am up for it. I was sicker then the 6 people in the lab getting chemo! They will cut the dose down and give me a ton of "premeds" to make it tolerable next time. Is it worth it? Do you really feel better? I have been so weak and fatigued and everything else that I really want this to work. Thanks!
What type of iron did you receive through the IV. Was it iron dextra? Apparently it has a little more side-effects, than another iron infusion that is available. I received the dextra with little problem, although I was seeing stars at first, they slowed it down and upped it again. After it seemed to go good. If you are having severe reaction to this, I don't understand why they would want you to continue. Could they not choose another way to get the iron in You? When did you have it done? and are you feeling better as far as the iron deficency symptoms go, since you had it done. Apparently from what I read it is the most quickest way to get a large amount of absorbable iron into your system with one sitting. Good luck!
I have had 3 infusions of Venofer and I have had 1 infusion of Dextran and I didn't have a reaction to either type. They gave me Benadryl, Tylenol, by mouth and a steroid shot through my IV before each round of iron. Plus they should give you a test dose to see if you have a reaction. The majority of people don't have the bad reactions. If your doctor didn't think you needed them and that would help he wouldn't be giving them to you. Think positively and I hope you feel better.
Iron IV can give you a reaction but they can wait a day or two and try a different type of Iron.

Any IV iron is worth it's weight in GOLD IMO.

Good Luck!

I had no reaction to my iron IV at all except relief from anemia quickly.
Make sure and tell your doctor about the side effects you had because my doctor told me and my other two sisters that he wouldn't give us any more iron infusions as we all had reactions to them even with the steroids and benadryl before hand. he said the reactions would only get worse. It was disappointing as we had another sister that never had the side effects. hang in there.
Don't be afraid ~ I have had two transfusion and each one I got a worse reaction to, but most people I read about have very little side effects, I even told them I have reactions to shell fish which has iron in it ~ just remember to have some Benadryl on hand, maybe go home after your treatment and take it easy for the day ~ I will say my mind wants to go but my body is too sore to move ~ Is it worth it, I don't know, my doctor is only doing two and then checking my rbc and iron in a month ~ which I'm grateful for a break ~ I'm 48 and feel like I'm asleep all the time in a coffin ~ so any amount of energy is better then none! I don't think with the bad reactions I had would have another iron IV infusion ~ let us know how you do ~ I was scared to ~ still am ~ wondering what is wrong with me ~





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