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Hey fellow anemics -

I just had my first IV Iron Infusion and it did not go well. I became short of breath, nauseated, weak, flushed... just all around horrible feeling. But of course I have been really hoping that this would be the answer after months of severe anemia. So we stopped the infusion for a while until I felt better and when we restarted it we went much slower. But this happened several times. Then, both of my hands swelled up like balloons! I was there for 10 hours but we finally got most of it in. (And I've been sick pretty much all night, finally starting to get back to normal).

Here's my question - has anyone else experienced anything like this? I am supposed to go back for at least 2 more doses and I just don't know if I am up for it. I was sicker then the 6 people in the lab getting chemo! They will cut the dose down and give me a ton of "premeds" to make it tolerable next time. Is it worth it? Do you really feel better? I have been so weak and fatigued and everything else that I really want this to work. Thanks!
Don't be afraid ~ I have had two transfusion and each one I got a worse reaction to, but most people I read about have very little side effects, I even told them I have reactions to shell fish which has iron in it ~ just remember to have some Benadryl on hand, maybe go home after your treatment and take it easy for the day ~ I will say my mind wants to go but my body is too sore to move ~ Is it worth it, I don't know, my doctor is only doing two and then checking my rbc and iron in a month ~ which I'm grateful for a break ~ I'm 48 and feel like I'm asleep all the time in a coffin ~ so any amount of energy is better then none! I don't think with the bad reactions I had would have another iron IV infusion ~ let us know how you do ~ I was scared to ~ still am ~ wondering what is wrong with me ~





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