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Well, I saw my doctor today to go over my most recent labwork and my hgb and hct are going down again. This is after receiving a few IV iron infusions and for a little while things started to go up, then back down, then I had a couple more infusions and things started to go up, and now things are going back down again. Of course, throughout all of this I've had 5 different GI tests done since I've tested positive several times for hidden blood in my stool. They still haven't found the cause/source of bleeding, although they seemed to have it narrowed down to the small intestine. For now, my doctor has told me not to exercise (and I'm usually pretty active) until they find out what's going on. She's going to talk with my hematologist and GI doctor and see what they can come up with.
I don't know what else they can do...I've had a colonoscopy, endoscopy, small bowel series, nuclear medicine study, and a capsule endoscopy. I was wondering if anyone else out there has been in this position, and what other tests they did? I'm really frustrated...not only because I'm not supposed to exercise, but this has been going on since December 2002...I'd like to find out what the problem is and get on with my life! Any thoughts/suggestions/advice would be much appreciated. Thanks

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