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I was diagnosed with pernicious anemia 8 yrs ago, have you had the "shilling test"? I'm not surprised he isn't all that concerned. My first Dr sent me home to and I went 3 more years til I finally went to see a neurologist and he immediately sent me for the shilling and several other tests. My level was 96 and I was getting those LLemerits shocks(sp) while at work, couldn't tell you what 99 from 100 was without writing it on paper and some real bizarre behaviour. You need to find out if you lack IF (intrinsic factor)because if you lack that you can take all the B12 supplements you want and it will just slide on through your system. My best advice is see a neurologist(it's his field)who will conduct tests to find out WHY your level is low. If it is just a matter of diet, then fine B12 supplements will do the trick but if you lack the IF which is necessary for your body to absorb the B12 then you will have to have the injections for life. I need to point out that B12 is nothing to fool around with, I was borderline dementia by the time I started getting treatment, my grandmother died from it at 44 and pernicous anemia in Latin means "violent death" Not trying to scare ya but at one time like before the 50's there was no cure for B12 def and it was a certain and violent death, my grandmother died 2 yrs before a cure was found. please see a neurologist, a primary doctor doesn't think of finding out the reasons for the low level, he just assumes it is the diet.
Hello Smokey,
I am also B-12 Def. I get an injection once a week because my doctor states that supp. will not help me. It was my neruologist that discovered it and my hematologist continued with the process. B-12 def. can lead to optic neuritis (sp) and since the injection, I don't have near the problem I use to have with my eyes.

I have a clotting disorder which is probably the cause. I have also been so anemic that I've had to have iron given to me via IV. That seemed to help boost my metabolism.

I too did not understand why I wasn't loosing weight when I wasn't doing anything different in my diet. I also eat meat so my def. is not due to my diet.

I agree, you need to see another doctor or ask your current doctor about the injection method. If you eventually get the injection method, you can eventually give yourself an injection and/or have someone else give it to you. My doctor gave me a prescription for it the nurses showed me how to inject it so that I don't have to go to the doctor every week.
PaNik5717, thanks - its been a cause of utter amazement that such healthcare is covered. We were *supposed* to take out coverage when we landed but it seems so far completely unnecessary, especially as I'm used to paying for dental and eyecare anyway from the UK.

Can someone enlighten me on what "B-12 def. can lead to optic neuritis (sp)" is???

" and since the injection, I don't have near the problem I use to have with my eyes." - can you elaborate a bit for me please??

I too did not understand why I wasn't loosing weight when I wasn't doing anything different in my diet. I also eat meat so my def. is not due to my diet.
....can I ask since you're now on jabs...how is this bit going on????

I agree, you need to see another doctor or ask your current doctor about the injection method. If you eventually get the injection method, you can eventually give yourself an injection and/or have someone else give it to you. My doctor gave me a prescription for it the nurses showed me how to inject it so that I don't have to go to the doctor every week.

I know you're right. I just have this phobia... weeeell not phobia exactly but I was brought up not to question doctors and I guess it scares me a bit. Still gotta be done. I'll give it till I have my holiday in October so I can say I've given it a good belt then well see!





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