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Hi Janet: Sorry I did not reply earlier, but yesterday I was at the hospital getting barium Xrays of my intestines looking for anything to account for my counts NOT going up after the infusion. I am not bleeding anywhere and there are no obstructions or growths. About the infusion....the benadryl is a safety thing to ward off serious reactions. The nurse gave it to me first and I got cotton mouthed but that was all. I did NOT fall asleep like a lot of the posts talk about. Then the nurse gave me 1cc of the iron (I do not have a clue either about what kind of iron I was getting), and I had to sit there in the chair for ONE HOUR to be sure that I would not have a reaction. IT went fine. Then the IV really began for real. I was there close to 5 hours but I had my IPod and my knitting so it did not bother me. The nurse put the needle in ABOVE my elbow on my left arm so I would be able to knit...that was a life savior. I drove home and felt fine. That was Tuesday. Wednesday I got up and felt great for the first time is ages. Went out to my school, and then I went to WallyWorld to get the groceries. I was there probably 30 minutes or so when I thought...oh, dear, I need to get home FAST. I do not feel so good. I spent the next two days in the bed. Had HORRIBLE bone and joint pain (like a HORRIBLE case of the flu) and nausea. I lived on Bob Evans mashed potatoes and Edys fruit juice bars. Saturday I got up, and I was fine and dandy as if nothing had ever been yucky the last two days. My energy has continued going up and up to where I really feel wonderful. The infusion was on the 31st of July. I went back to the hematologist/oncologist last Tuesday for more blood work to see how I was doing. My ferratin level was 309.51 from 16.5 (GOOD!!!)...BUT...my other counts were still bad. White blood cells OK, Red blood cells were up from 2.84 to 3.18 (LOW), my hemaglobin was up from 9.4 to 9.9(LOW), the hermatocrit was up from 28.0 to 31.6 (low), and my platelets were 402 which is HIGH. My doctor told me to come back in 5 weeks and if my counts were not improved significantly, she was going to do a bone marrow biopsy to test for myelodysplasia or MDS. NOT GOOD!!!! Now I am scared out of my mind after reading all about it on the internet and having a friend die from it just a short while back. I am 68 so am in the age bracket for the disease. I cry all the time and fret, stew, and worry. I have had to quit reading about the disease just to save my sanity. Thank goodness I have my job. I feel wonderful, and have changed my life plan drastically. I am walking 1 1/4 miles before work and again in the evening. I have joined"My Food Diary" on the internet and am tracking everything I eat and drink. I am living by the book or nutrition and drinking 6-8 glasses of water daily plus Gatorade for replacing the electrolites. I have quit all my pills except the Wellbutrin and Lorazapam because it I stop those I REALLY will cry all the time. My restless legs have gone away, and I no longer have to take medication to sleep. I am working everyday. The iron has certainly worked, but I am still eating iron rich foods and taking iron pills twice daily. I don't know what else I can do to take care of myself to help the blood counts. I have not read anywhere on this site about anyone having MDS or their hematologist saying if the counts did not come up he/she would do a bone marrow biopsy. But back to your possible iron infusion....don't worry...a couple of days of feeling yucky is worth the result. Good luck...I hope you get to feeling better soon. Genie





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