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I just started the iron IVs two weeks ago for the same thing except I'm not considered to have anemia yet. My iron stores are extremely low (count of 4) and the shots didn't help. I had 10 of them and it only raised my iron stores to an 8. I also had the surgery and would love to hear from anyone who's solved this iron situation because I really don't want permanent damage from this! If I need a weekly IV for life, so be it as long as I have energy and my metabolism back! (I, too, am going through the lethargy and possible weight gain from this).

Question 2: Are you having a hysterectomy to stop the monthly bleeding to help the anemia? Is that an option because I'd consider it!!

BTW, I had my surgery 15 months ago.
Thanks!!
Hope? God is still in the miracle working business. Find a church that believes in God's healing miracles and ask for prayer!

But first, we have to get an accurate diagnosis, and learn the root cause of this harm.

These things you mention:

stomach ulcer... (This could have started from a rash in your stomach from exposure to a chemical such as 2-butoxyethanol? I know of a worker exposed to this chemical who had a rash in his stomach and he WAS exposed to 2-butoxyethanol which causes skin rashes both internally and externally; now, 15 years later he has 'cracks' in his colon - this is VERY SERIOUS!)

have no intrinsic factor... For years I would have to go for blood transfusions. I have problems just eating because I don't absorb much or I have diarrhea. (How is your pancreas? One of the GLANDS disrupted by a chemical that is known also as a poison, a solvent, and a [b]pesticide[/b]. The digestive juices are part of what the pancreas does ... not just insulin. Do you have any abnormal blood sugar? ... either high or low?)

I have trouble with keeping my weight up also. (LIVER?)

panic attacks (CENTRAL NERVOUS SYSTEM DAMAGE?)

I have pernicious anemia (Eating liver is supposed to help this - more than anything)

and [color=red][b]autoimmune hemotylic anemia[/b][/color] (THIS IS KEY HARM FOR THOSE EXPOSED TO 2-BUTOXYETHANOL) BUT [b]YOU WOULD ALSO HAVE TO HAVE THE WRONG RATIO OF MATURE TO IMMATURE RED BLOOD CELLS. Do you?[/b] The 'retic ratio' will give an indication of this,and this test has most likely been part of what brought about this diagnosis. If the immune system is out of whack and prematurely destroying your own red blood cells, this is the ‘autoimmune’ and the cause of [b][color=red]FATIGUE![/color][/b] Also note that when you have too many immature red blood cells there are a lot of other tests that give a false reading: white blood cell count which must be done manually, not by a computer ... the liver reading will be off, etc. Do a search on yahoo for hemolytic anemia and note these tests

[b]extremely bad migraines![/b] YES, LIKE Hot POKERS, these headaches send you to your knees, right? I heard them described by the 'Gulf War Syndrome' vets of 1990-1991 gulf war AND by the Exxon Valdez oil spill cleanup workers who are KNOWN to be exposed to 2-butoxyethanol (ethylene glycol monobutyl ether)

low ferritin? Too many Immature red blood cells are the cause of your fatigue - which you've only briefly mentioned. You do have major fatigue, don't you? What were you dong 24 years ago when this all started?

don't understand why a double dose of iron doesn't bring up the ferritin level? Are you still being exposed to this chemical, 2-butoxyethanol? [b]Do you remember a time when your eyes burned and hurt, your urine turned dark, and you had flu-like symptoms and this HORRIBLE FATIGUE?!!![/b]

PS I think people in this group (& they are legion) also have concerns with autoimmune pancreas and autoimmune hepatitis from this same chemical's exposure. Maybe not ALWAYS a concern, but often. How are your kidneys? Your liver? The information on 2-butoxyethanol says that people should have regular checks for kidney and liver function.

I am hoping to do a study that gives doctors more data on this. If so, would you be willing to share your information to help others ... ?





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