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I had stomach surgery 24 years ago and it was similar to a gastric bypass. I had 2/3 of my stomach removed, the vagus nerve cut and the pyloric valve removed from a stomach ulcer. I have no intrinsic factor. For years I would have to go for blood transfusions. I have problems just eating because I don't absorb much or I have diarrhea. I have trouble with keeping my weight up also. I go about every 6 months for iron iv therapy and take monthly b12, which doesn't seem to help. I have panic attacks from the anemia. I have dealt with the side effects of the surgery for years and I just get tired of being so tired and anemic. I have pernicious anemia and autoimmune hemotylic anemia. I was told I would just have to do the iv therapy for the rest of my life. The doctor has added vitamins and minerals to the iv's that really seemed to help more than the iron. I had extremely bad migraines. I read that low manganese can cause them, so after he added that, the headaches have almost completely gone.
In December I got iron, but had to go back because of low ferritin, in January. I went July 26 for more iron. The doctor doubled the dose and I got a call day before yesterday to go back for another double dose. I don't understand why it doesn't bring up the ferritin level!
Is there anyone dealing with something similar? I would like to hear from you. I feel like there isn't much hope out there for us.
Hope? God is still in the miracle working business. Find a church that believes in God's healing miracles and ask for prayer!

But first, we have to get an accurate diagnosis, and learn the root cause of this harm.

These things you mention:

stomach ulcer... (This could have started from a rash in your stomach from exposure to a chemical such as 2-butoxyethanol? I know of a worker exposed to this chemical who had a rash in his stomach and he WAS exposed to 2-butoxyethanol which causes skin rashes both internally and externally; now, 15 years later he has 'cracks' in his colon - this is VERY SERIOUS!)

have no intrinsic factor... For years I would have to go for blood transfusions. I have problems just eating because I don't absorb much or I have diarrhea. (How is your pancreas? One of the GLANDS disrupted by a chemical that is known also as a poison, a solvent, and a [b]pesticide[/b]. The digestive juices are part of what the pancreas does ... not just insulin. Do you have any abnormal blood sugar? ... either high or low?)

I have trouble with keeping my weight up also. (LIVER?)


I have pernicious anemia (Eating liver is supposed to help this - more than anything)

and [color=red][b]autoimmune hemotylic anemia[/b][/color] (THIS IS KEY HARM FOR THOSE EXPOSED TO 2-BUTOXYETHANOL) BUT [b]YOU WOULD ALSO HAVE TO HAVE THE WRONG RATIO OF MATURE TO IMMATURE RED BLOOD CELLS. Do you?[/b] The 'retic ratio' will give an indication of this,and this test has most likely been part of what brought about this diagnosis. If the immune system is out of whack and prematurely destroying your own red blood cells, this is the ‘autoimmune’ and the cause of [b][color=red]FATIGUE![/color][/b] Also note that when you have too many immature red blood cells there are a lot of other tests that give a false reading: white blood cell count which must be done manually, not by a computer ... the liver reading will be off, etc. Do a search on yahoo for hemolytic anemia and note these tests

[b]extremely bad migraines![/b] YES, LIKE Hot POKERS, these headaches send you to your knees, right? I heard them described by the 'Gulf War Syndrome' vets of 1990-1991 gulf war AND by the Exxon Valdez oil spill cleanup workers who are KNOWN to be exposed to 2-butoxyethanol (ethylene glycol monobutyl ether)

low ferritin? Too many Immature red blood cells are the cause of your fatigue - which you've only briefly mentioned. You do have major fatigue, don't you? What were you dong 24 years ago when this all started?

don't understand why a double dose of iron doesn't bring up the ferritin level? Are you still being exposed to this chemical, 2-butoxyethanol? [b]Do you remember a time when your eyes burned and hurt, your urine turned dark, and you had flu-like symptoms and this HORRIBLE FATIGUE?!!![/b]

PS I think people in this group (& they are legion) also have concerns with autoimmune pancreas and autoimmune hepatitis from this same chemical's exposure. Maybe not ALWAYS a concern, but often. How are your kidneys? Your liver? The information on 2-butoxyethanol says that people should have regular checks for kidney and liver function.

I am hoping to do a study that gives doctors more data on this. If so, would you be willing to share your information to help others ... ?

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