It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board


Anemia Board Index
Board Index > Anemia | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


Hi all -

I was reading the ferritin posts and I have a quick question. I get confused about whether or not low ferritn causes symptoms other than hair loss. My doc says no - as long as my hgb and what not are good then the ferritin does not matter. My ferritin is any where from 3 -7 at the most. They all say its ok but I never feel good and I have anxiety/panic problems. As I said, all other iron tests are normal except for my iron store ( I am hypothyroid too as well though). I see people have transfusions - is that because your hemoglobin is low or for just low ferritin? I am SO confused!!!! :dizzy: Oh yea and I have constant dizziness/ear ringing that they say has nothing to do with the low ferritin, I am not sure though??

If you have read this - thank you!
[QUOTE=sahaira]Hi all -

I was reading the ferritin posts and I have a quick question. I get confused about whether or not low ferritn causes symptoms other than hair loss. My doc says no - as long as my hgb and what not are good then the ferritin does not matter. My ferritin is any where from 3 -7 at the most. They all say its ok but I never feel good and I have anxiety/panic problems. As I said, all other iron tests are normal except for my iron store ( I am hypothyroid too as well though). I see people have transfusions - is that because your hemoglobin is low or for just low ferritin? I am SO confused!!!! :dizzy: Oh yea and I have constant dizziness/ear ringing that they say has nothing to do with the low ferritin, I am not sure though??

If you have read this - thank you![/QUOTE]
Ferritin is a protein molecule that iron is stored in for future use. If the ferritin is low, it indicates that there is no iron available beyond what is being taken in and used from daily diet. IF the diet is good, then there is usually no problem. If you have a menstrual problem or other bleeding problem, you may have a lowered hemoglobin count which may or may not cause symptoms. Ringing of the ears can be caused by anything from a sinus infection to drinking too much caffeine. Some people take a lot of pain medications and can not avoid ringing ears. That is called Tinnitus and is sometimes just an aging problem and sometimes is caused by diabetes or other neurological problems. I have even read that ringing ears can be caused by too much arsenic in drinking water etc. The main thing to understand is that Ferritin does not cause symptoms one way or the other. It is just a measurement of the body's ability to use or store iron, without having to do a bone marrow test, to find out if any disease process has been detected. By itself, ferritin level mean nothing.
[QUOTE=fjones1;2901411]I'm confused about this also. My doctor wants me to get an infusion becuase my ferritin dropped to 10 from 23 in the last month, even while taking iron supplements (Spatone and Slow FE Ferrous Sulphate) He wants to find out the cause of my low iron but still thinks I need an infusion. My saturation is also low. I'm supposed to have a pelvic ultrasound, then do the colon exam later on. Has anybody with normal hemaglobin had the infusions? I know the blood transfusions are only for people with hemaglobin in the single digits, or under 10, right?[/QUOTE]

I am going for yet another iron infusion this week. My hgb has been normal for the last two previous infusions, but my ferritin keeps dropping. I was told to stay healthy, I need to have my ferritin level to be 50, and that is coming from my hematologist. I can tell the difference when I am running low. My ice pica comes back and feeling tired, muscle aches and headaches. You can have all kinds of problems with iron defieciency. Transfusion are for people who's hemablogin falls under 7according to my gp. If don't stay on top of your ferritin levels and it keeps going down, you will begin to have lower hgb thus resulting in anemia.
[QUOTE=alwayshotroddin;2901635]I have been reading your posts on this topic. Does anyone know how long you can have low ferritin levels before your hemoglobin levels start to drop? I first found out my ferritin level was at 11.6 in January and since then it's dropped to 4.0 as of last week (this is also while I'm taking iron supplements). My iron saturation level is also low. Just curious to know what might happen next if my ferretin levels don't start to go up?[/QUOTE]
For those asking about ferritin levels and iron. The ferritin level measures how good your body is at extracting iron from food or supplements you are taking. If you are a vegetarian who eats no eggs, cheese or other dairy products, your source of iron is a plant source such as beets, etc. There is iron in vegetables, primarily root vegetables, potatoes etc. It is not heme iron, but it is iron. Then meats: beef, pork, chicken are the primary sources of heme iron, with eggs being a good source if you eat the yolk, that of course is an issue with some health considerations.
Either way you get iron, the body uses what it needs for daily functioning and stores the rest in a storage area for drawing on if you get food deprived. If you are nutrition deprived, you will lose your hair, primarily a protein loss issue, you finger nails will become brittle, break easily or will get streaks, you may get mouth sores easily. All of those symptoms are from not enough available iron. Ferritin again without any other information about your nutritional status means nothing. Usually, people will seek medical attention while they still have a little ferritin left because of other problems and symptoms. Thyroid problems can be silent too. Depression for any reason can make the body stressed out and not respond to available nutrition. It is not caused by what you think, the depression causes the way you may feel and your appetite may become picky or non-nutritious just at the time you need the food the most. I hope that will help you to understand. Some people can have a low hemaglobin and low ferritin and feel awful, some can have a normal hemaglobin and a low ferritin level and never know it. Some can have a low hemaglobin, be short of breath, and think they have a virus and they have been gradually dropping in iron all along and never connected it together.
Some people are always different than other people so that is what medical practice is all about, there are no definite answers except the one you believe.
I have been anemic and had many symptmoms but thank goodness I have never had problems with my hair falling out. My ferritin is currently 3 and my hmgl is 10.7. I have been back on my iron for a couple of weeks and will get my blood tested again next week to see if my hmgl has gone up. My hmgl was 4.3 in the fall of 2005 so I had a blood transfusion-4 units. At that time my ferritin was 4. I have been having problems running, as I always do when my numbers are low. I was running 3-3.5 miles and kept a good pace and now can run 1/4 mile but have to drag myself every step of the way. I can play basketball, bike ride and do other activities but I guess that to run you need sustained energy for an extended amount of time. It seems that since 10.7 is not a terribly low number for hmgl that it is the low ferritin that contributes more to my inability to run. Any comments on exercise and anemia.

Thanks!
Hi Sparkles, well i'm not a doctor, but from what i have found out is that ferritin is the important one, but in general doctors and people alike tend to refer to the levels in a general way by simply saying "iron levels". When i get my blood test results there are always seperate figures for iron itself and ferretin and my specialist always says that the ferretin is the one to keep an eye on.

My levels had increased during my last blood test, but my specialist will not hear of my going off my iron supplement until i'm close to 150. He wants me up so high so that if i fall dramatically again i wont fall so far that it will take forever to get back up again and i wont go through the hair loss trauma. So if your ferritin is only up to 18 now i would not be stopping any additional iron supplementation and i have no idea where on earth your doc is coming from in giving you advice to not take any further iron supplements. The problem is which iron supplement to take as some of them are not that strong and you could be on it forever and not see much of a difference. An over the counter iron supplement i was on for a whole year didn't do that much for me and my specialist told me i could double or triple the dosage easily without overdosing. I'd never double or triple any medication without consulting a doctor, but that simply goes to show you how weak some of the supplements out there really are. Unless you find a great doctor who truly is interested in your cause, i feel none of us stand a chance.

The problem with having continuous very low iron levels is that for some people it can cause an irreversable thyroid condition and that is something you dont want to end up with on top of the hair loss.

kfont.....you mention that your low iron hasn't affected your hair, but you have problems with running. For me, no matter how low my iron got, it didn't affect my general daily stamina nor my skin or nails. Low iron levels affect everybody in different ways. I would only feel overwhelming tiredness after breakfast on the weekends, but the rest of the day or my weekdays i was on the go with no problems and my nails were healthy, which surprised my doctor, but i had been sufferent the ongoing cycle of hair growth and quick fall out since January 2001.

The one thing which i feel may also be helping me is that my specialist has me on an Amino Acid Complex tablet twice per day which i take 20 mins before breakfast and dinner. It basically helps the body absorb vitamins and minerals much better.

If you want to read up on more info you can ****** the name Anthony Pearce Trichologist and he writes some very easy to understand info on hair loss which might be of benefit. You just have to remember that there is no magic wand and it takes quite a while for things to start happening.
[QUOTE=Audrey-B;2955394] So if your ferritin is only up to 18 now i would not be stopping any additional iron supplementation and i have no idea where on earth your doc is coming from in giving you advice to not take any further iron supplements.[/QUOTE]

I have seen at least 5 drs over the years. All say its either fine or its low, but ok. Interestingly, I saw a very highly regarded hematoligist...waited months for the appointment. It was he who said, [I]not[/I] to take iron! All I can say is thank god for the internet. There is a whole world of literature out there that flatly contradicts his "advice"

[QUOTE=Audrey-B;2955394] The problem with having continuous very low iron levels is that for some people it can cause an irreversable thyroid condition and that is something you dont want to end up with on top of the hair loss. [/QUOTE]

I have thyroid disease, just diagnosed in the last year. Again, overlooked by drs for many, many years. I had heard that some thyroid people have anemia/deficiencies, but I have never heard of it [I]causing[/I] thyroid problems. Do you remember where you heard it? I would be most interested to read it. :)





All times are GMT -7. The time now is 05:13 PM.





© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!