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Kezzalou,

Sorry my link about where I get the b12 isn't allowed. No, the tablets were not expensive at all. I pay just over $7 for 90 tabs. Good luck with your search. Mods, am I allowed to provide the name of the vitamin? It can be purchased at other places besides the one I order from. People use perscription drug names...just wondering, I would like to steer Kessalou in the right direction.

Yes, 1000-2000 ug is the recommended rate for sublingual b12. Many studies suggest 2000 for the first couple weeks, then drop it to 1000. I am doing 2000 one day and 1000 the next. B12 excess will turn your urine a neon yellow. In spite of my high doseage, I rarely have that. In fact my urine is very pale. I figure my body must be using all that B12 :confused:

My ferritin was 60 at the last check, but my bone marrow aspirate (done the same day) revealed absolutely no iron in the bone marrow. I know a falsely elevated ferritin level can be caused by inflammation, but I don't have any inflammatory diseases I am aware of. I also have a mildly elevated platelet count, with megakaryocyte (the bone marrow's precursors to platelets) hyperplasia.

My b12 last tested at just over 300. However, I was having some neurological problems, and my blood smear (also done the same day as the aspiration) revealed hypersegmented neutrophils (a sign of b12 or folate deficiency). My folate tested pretty high, and the hemotologist just wants me on the iron and b12. Outside the USA, many countries consider anything below 500 on B12 to be deficient.

Being a vegetarian can most certainly affect your B12 and iron levels.

Zoe
Sorry it has taken me so long to get back. What a roller coaster! The day after I had the MDS diagnosis my granddaughter was very ill with a high fever, 2 mild siezures because of it...in the ER twice, at the doctor's twice, then amazingly and blessedly, she was fine. But it was 3 days of [email protected]%ll!

Anyway, MDS is myelodysplatic syndrome. Basically it is a bone marrow dysfunction where the cells produced are dysfunctional and die in the bone marrow. I went to the cancer clinic. She confirmed the diagnosis and thinks I may have a mild form of MDS (well, that is relatively speaking as stats say that 50 % of the folks with this mild form will be dead in 6 years--but hey that means 50% will be alive too :wave: ) I am having a second bone marrow biopsy Thursday with FISH chromosome testing. It is a more sensitive chromomsome test than I had the first time and tests 200 instead of 20 cells. My first test showed that two chromosomes might be affected--one for sure, one maybe not, so this test will look closely at the maybe not chromosome. Prognosis varies greatly depending on if that second chromosome is affected.

I will try posting the name of the B12 I take, hope it is OK. I haven't heard otherwise. It is Natural Factors sublingual methylcobalamin--cobalamin just means B12, but saying it makes one look smart :rolleyes:

B vitamins are water soluable and extra is excreted through the urine. Other vitamins and minerals can be dangerous if you take too much. Iron is one of them. Your body cannot get rid of extra iron and overload can cause serious damage.

Did the neurologist test for MMA? Methylmalonic acid? It will be elevated if you are deficient in B12. The hematologist told me that it is a more sensitive test than serum B12.

Zoe





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