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Merry Christmas All
I was reading these board for the first time...
Let me tell you that I have been anemic most of my adult life (46 now)...with a progression. I always had lower stamina then anyone else.......and for the longest time believed I had a heart condition. 2 cardiologists ruled that out.
Just to add......I had 3 generations of women in my family with Pernicous Anemia..ending with my grandmother. I do not have it. But I finally saw a gastroenterologist 7 yrs or so ago, and he diagnosed me with Celiac Sprue....which is somehow related to Pernicious anemia perhaps in that it could be an autoimmune disease. In any case.......I sometimes watch my diet..(supose to exclude all gluten wheat, rye, oats, barley..etc..) but it's very difficult and sometimes I just eat what I want. So I have been running around the last few years or so with a hemoglobin around 8. Now what's happened is that I am becoming pre-menopausal and having VERY heavy periods......HEAVY. And 2 times in the last year have been hospitalized with hemoglobins of 5.9 last year...........and last month 4.4........live threatening. I am probably facing hysterectomy soon .
I would love to hear from anyone in a similar situation as mine.
All comments welcome.......
I don't know if it's the Holiday..........but I feel...........so detached, afraid another bleed will kill me.....
A note to all........Hang in there.!!
[QUOTE=AnnJorgensen;2711013]Merry Christmas All
I was reading these board for the first time...
Let me tell you that I have been anemic most of my adult life (46 now)...with a progression. I always had lower stamina then anyone else.......and for the longest time believed I had a heart condition. 2 cardiologists ruled that out.
Just to add......I had 3 generations of women in my family with Pernicous Anemia..ending with my grandmother. I do not have it. But I finally saw a gastroenterologist 7 yrs or so ago, and he diagnosed me with Celiac Sprue....which is somehow related to Pernicious anemia perhaps in that it could be an autoimmune disease. In any case.......I sometimes watch my diet..(supose to exclude all gluten wheat, rye, oats, barley..etc..) but it's very difficult and sometimes I just eat what I want. So I have been running around the last few years or so with a hemoglobin around 8. Now what's happened is that I am becoming pre-menopausal and having VERY heavy periods......HEAVY. And 2 times in the last year have been hospitalized with hemoglobins of 5.9 last year...........and last month 4.4........live threatening. I am probably facing hysterectomy soon .
I would love to hear from anyone in a similar situation as mine.
All comments welcome.......
I don't know if it's the Holiday..........but I feel...........so detached, afraid another bleed will kill me.....
A note to all........Hang in there.!![/QUOTE]

Hi Ann,

When was the last time you went to the GYN for an exam? I'll post here what I posted in another thread:

During my last round of visits with my GYN late last year, she detected that I had 3 polyps, which turns out played a role in my heavy bleeding, my really bad PMS, cramps, etc. Since they were removed, the bleeding was really heavy for about two cycles then calmed down considerably. The PMS (cramps) had lessened to, I still get them but they dont make me double over and I dont have to take tons of tylenol anymore. Also my skin cleared up alot, go figure.

A hysterectomy is drastic, check with your GYN for other options. Also look into liquid iron, I'm looking into that now to see if it will help.





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