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Hi there!

You have my sympathy, empathy and 'boy can I relate'! Your post could be mine as our situations are so similar...

Have you talked to your surgeon that did your wls? If so, did they have any suggestions? I called mine two weeks ago and they immediately asked, "How is your poop?" lol....the nurse assured me they deal w/ poop stuff all the time and it was important that they know. She thinks I may be bleeding somewhere internally and scheduled me for an upper/lower GI this friday.

Have you been checked for that?
Do the doc's think you just don't absorb iron? That is what my hematologist thinks...but said it is worth doing the GI study to rule out other issues. He wants to start me on the IV iron in a week or so...

Forgive me...I am fuzzy headed from just waking up...and can't remember all you said in your post...But, I think your #'s are too low, even if they are still on the lab's scale of 'normal' it doesn't mean they are enough to make you functional, make sense?
For example, my B-12 came back as 400 something...and the lab range was 350-800...but my gastric bypass surgeon likes to see his patients w/ B-12 levels at 1,000, for optimum health! A lot of wiggle room there!
Whereas, my pcp looked at the numbers and said my #'s were just fine.

I will post again later...after I wake up and get my errands done. It truly stinks that anemia sucks the energy and life right out of you. My husband tries to be patient, but he doesn't get it - that all I want to do is sleep. Not that it helps. Just as eating tons of crushed ice doesn't help...but the cravings are overwhelming. The apathy for doing anything - meeting up w/ friends, going for a walk, going grocery shopping - because it zaps me of energy just contemplating what to wear...brushing my teeth...fixing my hair...kwim?

My 13 yr old son said I am like a ghost...here but almost invisible...
One thing I forgot to mention is that my gyno put me on bcp last week and told me to take them all month so I don't get periods. He feels that even my moderate periods are too much for my body to take right now and anything we do will help. We shall see.

sleepily,
Tana
[FONT="Comic Sans MS"][B][COLOR="Indigo"]I am almost five years post-op RNY Gastric bypass. I started having iron issues at about two years post-op.
Your Ferritin is dangerously low at only 2. The infusion you may be talking about is the one I get. InFeD. I have had two IV iron infusions (1,200mgs each). They were over two days each. They brought my levels up temporarily. I did feel good for awhile.
I suffered tremendously before my PCP finally ordered them. My ferritin got as low as 12. I was exhausted, dizzy and this last time I experienced shortness of breath. My PCP finally referred me to a hematologist. She had me go off oral iron for two months to see if it is even helping. She said that I will probably need IV Iron infusions every six months. I see her Tuesday for more info.
The infusions are not so bad. I'd do anything to get rid of the fatigue. I hope that you feel better soon.[/COLOR][/B][/FONT]
[QUOTE=Ritah;2775134][FONT="Comic Sans MS"][B][COLOR="Indigo"]I am almost five years post-op RNY Gastric bypass. I started having iron issues at about two years post-op.
Your Ferritin is dangerously low at only 2. The infusion you may be talking about is the one I get. InFeD. I have had two IV iron infusions (1,200mgs each). They were over two days each. They brought my levels up temporarily. I did feel good for awhile.
I suffered tremendously before my PCP finally ordered them. My ferritin got as low as 12. I was exhausted, dizzy and this last time I experienced shortness of breath. My PCP finally referred me to a hematologist. She had me go off oral iron for two months to see if it is even helping. She said that I will probably need IV Iron infusions every six months. I see her Tuesday for more info.
The infusions are not so bad. I'd do anything to get rid of the fatigue. I hope that you feel better soon. And yes he told me not to bother with the oral iron as I am not absorbing it anyway.[/COLOR][/B][/FONT][/QUOTE]


[SIZE="2"][FONT="Century Gothic"][COLOR="Navy"]Thank you for your reply. Yes my hema doc ordered me to have InFed. Did you have many side affects with this iron??? He told me the risk is higher but it would be so worth it. Yes he is not too happy about my ferritin being 2. I have suffered from extreme exhaustion, dizziness, feeling week, and I do get short of breath but I have asthma and I aslway thought that was the reason. He wants my ferritin to be at least 100. I will get my first infusion on Tuesday the 6th then another one, one week later. He will do my labs after one month... then continue to do them every three months. How long did it make you feel better for???[/COLOR][/FONT][/SIZE]
[QUOTE=Mom2JAM;2773945]Hi there!

You have my sympathy, empathy and 'boy can I relate'! Your post could be mine as our situations are so similar...

Have you talked to your surgeon that did your wls? If so, did they have any suggestions? I called mine two weeks ago and they immediately asked, "How is your poop?" lol....the nurse assured me they deal w/ poop stuff all the time and it was important that they know. She thinks I may be bleeding somewhere internally and scheduled me for an upper/lower GI this friday.

Have you been checked for that?
Do the doc's think you just don't absorb iron? That is what my hematologist thinks...but said it is worth doing the GI study to rule out other issues. He wants to start me on the IV iron in a week or so...

Forgive me...I am fuzzy headed from just waking up...and can't remember all you said in your post...But, I think your #'s are too low, even if they are still on the lab's scale of 'normal' it doesn't mean they are enough to make you functional, make sense?
For example, my B-12 came back as 400 something...and the lab range was 350-800...but my gastric bypass surgeon likes to see his patients w/ B-12 levels at 1,000, for optimum health! A lot of wiggle room there!
Whereas, my pcp looked at the numbers and said my #'s were just fine.

I will post again later...after I wake up and get my errands done. It truly stinks that anemia sucks the energy and life right out of you. My husband tries to be patient, but he doesn't get it - that all I want to do is sleep. Not that it helps. Just as eating tons of crushed ice doesn't help...but the cravings are overwhelming. The apathy for doing anything - meeting up w/ friends, going for a walk, going grocery shopping - because it zaps me of energy just contemplating what to wear...brushing my teeth...fixing my hair...kwim?

My 13 yr old son said I am like a ghost...here but almost invisible...
One thing I forgot to mention is that my gyno put me on bcp last week and told me to take them all month so I don't get periods. He feels that even my moderate periods are too much for my body to take right now and anything we do will help. We shall see.

sleep[SIZE="2"][COLOR="Blue"]ily,
Tana[/QUOTE]

Yes my labs were very low. My ferritin is only 2 and he wants it at least 100. I have not seen my wls in quite some time. I need to get in for a check up. I have not seen him since I was one year post op. I am sure he would not be pleased with my labs. I hope your infu[/COLOR][/SIZE]sions make you feel better.
[QUOTE=Ritah;2775134][FONT="Comic Sans MS"][B][COLOR="Indigo"]I am almost five years post-op RNY Gastric bypass. I started having iron issues at about two years post-op.
Your Ferritin is dangerously low at only 2. The infusion you may be talking about is the one I get. InFeD. I have had two IV iron infusions (1,200mgs each). They were over two days each. They brought my levels up temporarily. I did feel good for awhile.
I suffered tremendously before my PCP finally ordered them. My ferritin got as low as 12. I was exhausted, dizzy and this last time I experienced shortness of breath. My PCP finally referred me to a hematologist. She had me go off oral iron for two months to see if it is even helping. She said that I will probably need IV Iron infusions every six months. I see her Tuesday for more info.
The infusions are not so bad. I'd do anything to get rid of the fatigue. I hope that you feel better soon.[/COLOR][/B][/FONT][/QUOTE]

Ritah: I am not a post op person, but just a low ferritin person. I wondered if it was only your ferritin that was 12, or if you had any other problems that promted your dr to take action.

My ferritin is 18 (range 9-120). I am fatigued, dizzy and can hardly exercise anymore. I am also being treated for hypothyroid.

I went to a hematologist who basically made me feel ridiciulous for coming, since I an not clinically "anemic". I read that there are depletion/deficiency levels that are just as debilitating, however.

I am just trying to see what others have gotten in terms of good advice from drs/hemos about what ferritin level a person should aim for.

Thankx:)
[QUOTE=sparkles916;2938106]Ritah: I am not a post op person, but just a low ferritin person. I wondered if it was only your ferritin that was 12, or if you had any other problems that promted your dr to take action.

My ferritin is 18 . I am fatigued, dizzy and can hardly exercise anymore.
I went to a hematologist who basically made me feel ridiciulous for coming, since I an not clinically "anemic"
Thankx:)[/QUOTE]
[FONT="Comic Sans MS"][B]I had a difficult time getting proper treatment, because my other iron numbers looked normal except for the ferritin. One doctor even told me I was so tired because I must be depressed or stressed. I finally demanded to be referred to a specialist. (hematologist)
My Hematologist says that I am not "anemic". She treats my low ferritin with I.V. Iron Infusions. My only problem was low ferritin before my first two infusions, and the terrible symptoms. The last time my ferritin was at 17. My symptoms were fatigue, dizziness and shortness of breath. She said that we will try and keep my ferritin above 50.
I have read that even in non gastric bypass people, once the ferritin is so low it is difficult to bring it up with pills. It sounds like you need to seek another doctor's opinion.
I became frightened the last time when I had shortness of breath. I usually do an hour of cardio a day, when my ferritin is low I really have a difficult time getting my exercise in. I did 30 minutes today and napped for three hours!
I'm having an infusion next Friday. I really need it. Just got back from Hawaii and I am sooo pale and tired. This time my iron serum and saturation is low and my ferritin is at 125.
HTH
Rita[/B][/FONT]





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