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I would definitely get a referral to a hematologist and get some IV iron if your ferritin is too low to measure. I receive IV iron weekly and have been since September because of a very low hemoglobin and ferritin that was 2. For some reason I don't absorb the oral iron well enough to keep the iron stores in my bone marrow at a normal level. The IV iron is absorbed much more quickly than the oral and that will help you to feel better. My hematologist told me it takes awhile when the ferritin and saturation were as low as mine were. I get IV Venofer and I haven't had any bad reactions to it at all. It goes in over about 20 minutes to a half hour. See a hematologist to see what he/she can do for you.
[QUOTE=Shamrock;2836737]I would definitely get a referral to a hematologist and get some IV iron if your ferritin is too low to measure. I receive IV iron weekly and have been since September because of a very low hemoglobin and ferritin that was 2. For some reason I don't absorb the oral iron well enough to keep the iron stores in my bone marrow at a normal level. The IV iron is absorbed much more quickly than the oral and that will help you to feel better. My hematologist told me it takes awhile when the ferritin and saturation were as low as mine were. I get IV Venofer and I haven't had any bad reactions to it at all. It goes in over about 20 minutes to a half hour. See a hematologist to see what he/she can do for you.[/QUOTE]

To Shamrock, I was wondering about your iron transfusions, I was told yesterday I needed Iron my ferritin is also too low to measure they say zero can't find it. I had low iron about 6 months ago and passed out, they said iron too low and gave me blood transfussions at the time I did not want them I heard could be dangerous. Now after 6 months my blood is even worse. So this time they said iron. Now, that I have read this site I guess it looks like the type of iron you get makes a difference Venofer seems to be the newest one. I am like allergic to everything so my concern is a reaction to this iron. I was wondering if you could share more information. I also live in Mass, outside of Boston. You say it takes half hour I read someplace else it take 3 hours. When I had blood it took 3 hours, so I was wondering about that.
I am so nervous I am almost thinking I'll just wait till I passout out, but my problem is they say my iron is so low my pulse rate runs 110-135 and at times goes as high as 170 which I risk heart attack or taccacardia they tell me. Other than this problem at 52 I never really had blood problems. I have tried to find another way to get iron into me there really is not good oral out there. And I also eat red meat everyday and beans and fortified cereals and I guess that has not worked. When I passed out 6 months ago, they did the usual, endo and colonocopsy and all the tests to say I was losing blood someplace but found nothing. I am allergic to latex and seafood and iodine and that is always a problem because if I buy vitamins with iron they have iodine. Thanks
TREE1A, I receive the IV iron once a week at an outpatient hematology/oncology clinic. I get IV Venofer which is only a small bag that goes in over 20 min-half hour. They are giving me the Venofer because,like you,I am allergic to everything under the sun including shellfish and iodine dye. Apparently the other types of IV iron go in over a longer period of time(2-3 hrs.) and have many more side effects. People that receive that type of iron also are premedicated with Benadryl to lessen the chances of allergic reactions. My hematologist feels that my anemia is due to my bone marrow not adequately absorbing the iron. I have to take medication for lupus and he feels that some of them block the iron absorption so the pills aren't enough. IV iron is also absorbed much more quickly by the bone marrow. I ahve been getting it since Sept. and my Hct. and Hgb. have gone up but my iron saturation and ferritin levels are still way too low. He told me last week that it takes a long time to rebuild the stores in the bone marrow. He said that I was probably anemic for a few years without knowing it and that I wasn't aware until I had bad symptoms of fatigue,dizziness,etc. Don't be afraid of the IV iron. It really helps you feel alot better and other than a little achiness the day after I have no side effects from it. Hope this info helps!
[QUOTE=mbbasketball;2852895]You do not need to fast for the IV iron treatment. Take a good book to ready, you will be there the first time approx 4 hrs. They will give you a small amount of iron to see if you are allergic that takes about 45min, then they will give your the remainder which could take about 3hrs. After the first treatment with no allergic reaction, the following treatments will not require the 45min prep. Those other ones usually takes about 3hrs. You can take a snack if you feel like you need to eat. At my hematologist, they usually have drinks provided. I know for my first treatment, I actually fell asleep, because of the benadryl.[/QUOTE]
A venofer iron infusion only last about 30 minutes after the IV is started. The hardest part is getting stuck for the IV!
[QUOTE=mbbasketball;2852895]You do not need to fast for the IV iron treatment. Take a good book to ready, you will be there the first time approx 4 hrs. They will give you a small amount of iron to see if you are allergic that takes about 45min, then they will give your the remainder which could take about 3hrs. After the first treatment with no allergic reaction, the following treatments will not require the 45min prep. Those other ones usually takes about 3hrs. You can take a snack if you feel like you need to eat. At my hematologist, they usually have drinks provided. I know for my first treatment, I actually fell asleep, because of the benadryl.[/QUOTE]
A venofer iron infusion only last about 30 minutes after the IV is started. The hardest part is getting stuck for the IV!:wave:





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