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my dr. called and told me that my ferritin was 2, hemaglobin was 8. he said it was no wonder i was tired and set me up with a hematologist. i go march 30. he also sent me in the er to meet a dr. to evaluate my symptoms(shortness of breath with exerction. tired, fatigue, headache, legs jumping at night, sores in my mouth,sides of my mouth always cracked.) they found no blood loss in stool and periods not heavy, but with ferritin of 2 he gave me 2 units of packed red cells. he said in 120 days those will break down and turn into iron. he said my marrow was starving and this would help. now we need to find out where the low levels came from. alot of test and will see hematologist on 3oth. you need a hematologist. they will not only look at your levels but find out why they are what theyare. i feel better already and that was on monday. there are answers you just have to keep looking foor the right person to help. i had iv iron but had bad reaction he said with the reaction i had (couldn't breathe) he would not give me any form of it again. but i will have to find a way to replace iron. not yet sure how he'll have me do that. (but most people do not have problems with iv iron.)bea kay
:) my dr. called and told me that my ferritin was 2, hemaglobin was 8. he said it was no wonder i was tired and set me up with a hematologist. i go march 30. he also sent me in the er to meet a dr. to evaluate my symptoms(shortness of breath with exerction. tired, fatigue, headache, legs jumping at night, sores in my mouth,sides of my mouth always cracked.) they found no blood loss in stool and periods not heavy, but with ferritin of 2 he gave me 2 units of packed red cells. he said in 120 days those will break down and turn into iron. he said my marrow was starving and this would help. now we need to find out where the low levels came from. alot of test and will see hematologist on 3oth. you need a hematologist. they will not only look at your levels but find out why they are what they are. i feel better already and that was on monday. there are answers you just have to keep looking for the right person to help. i had iv iron but had bad reaction he said with the reaction i had (couldn't breathe) he would not give me any form of it again. but i will have to find a way to replace iron. not yet sure how he'll have me do that. (but most people do not have problems with iv iron.)bea kay:)
You do not need to fast for the IV iron treatment. Take a good book to ready, you will be there the first time approx 4 hrs. They will give you a small amount of iron to see if you are allergic that takes about 45min, then they will give your the remainder which could take about 3hrs. After the first treatment with no allergic reaction, the following treatments will not require the 45min prep. Those other ones usually takes about 3hrs. You can take a snack if you feel like you need to eat. At my hematologist, they usually have drinks provided. I know for my first treatment, I actually fell asleep, because of the benadryl.
[QUOTE=Shamrock;2836737]I would definitely get a referral to a hematologist and get some IV iron if your ferritin is too low to measure. I receive IV iron weekly and have been since September because of a very low hemoglobin and ferritin that was 2. For some reason I don't absorb the oral iron well enough to keep the iron stores in my bone marrow at a normal level. The IV iron is absorbed much more quickly than the oral and that will help you to feel better. My hematologist told me it takes awhile when the ferritin and saturation were as low as mine were. I get IV Venofer and I haven't had any bad reactions to it at all. It goes in over about 20 minutes to a half hour. See a hematologist to see what he/she can do for you.[/QUOTE]

To Shamrock, I was wondering about your iron transfusions, I was told yesterday I needed Iron my ferritin is also too low to measure they say zero can't find it. I had low iron about 6 months ago and passed out, they said iron too low and gave me blood transfussions at the time I did not want them I heard could be dangerous. Now after 6 months my blood is even worse. So this time they said iron. Now, that I have read this site I guess it looks like the type of iron you get makes a difference Venofer seems to be the newest one. I am like allergic to everything so my concern is a reaction to this iron. I was wondering if you could share more information. I also live in Mass, outside of Boston. You say it takes half hour I read someplace else it take 3 hours. When I had blood it took 3 hours, so I was wondering about that.
I am so nervous I am almost thinking I'll just wait till I passout out, but my problem is they say my iron is so low my pulse rate runs 110-135 and at times goes as high as 170 which I risk heart attack or taccacardia they tell me. Other than this problem at 52 I never really had blood problems. I have tried to find another way to get iron into me there really is not good oral out there. And I also eat red meat everyday and beans and fortified cereals and I guess that has not worked. When I passed out 6 months ago, they did the usual, endo and colonocopsy and all the tests to say I was losing blood someplace but found nothing. I am allergic to latex and seafood and iodine and that is always a problem because if I buy vitamins with iron they have iodine. Thanks
[QUOTE=mbbasketball;2852895]You do not need to fast for the IV iron treatment. Take a good book to ready, you will be there the first time approx 4 hrs. They will give you a small amount of iron to see if you are allergic that takes about 45min, then they will give your the remainder which could take about 3hrs. After the first treatment with no allergic reaction, the following treatments will not require the 45min prep. Those other ones usually takes about 3hrs. You can take a snack if you feel like you need to eat. At my hematologist, they usually have drinks provided. I know for my first treatment, I actually fell asleep, because of the benadryl.[/QUOTE]
A venofer iron infusion only last about 30 minutes after the IV is started. The hardest part is getting stuck for the IV!
[QUOTE=mbbasketball;2852895]You do not need to fast for the IV iron treatment. Take a good book to ready, you will be there the first time approx 4 hrs. They will give you a small amount of iron to see if you are allergic that takes about 45min, then they will give your the remainder which could take about 3hrs. After the first treatment with no allergic reaction, the following treatments will not require the 45min prep. Those other ones usually takes about 3hrs. You can take a snack if you feel like you need to eat. At my hematologist, they usually have drinks provided. I know for my first treatment, I actually fell asleep, because of the benadryl.[/QUOTE]
A venofer iron infusion only last about 30 minutes after the IV is started. The hardest part is getting stuck for the IV!:wave:





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