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Bananarama--You have your share of things, but are much younger:). I'm sorry that you have so much to deal with too.

I can't imagine having kidney stones either. That must have been painful to say the least. And I hate to go to the ER (phobia) whitecoat. My Hematologist doesn't wear a coat, he's Mr. Stud and wears jeans. He says he does that to make patients feel comfortable. He deals with cancer patients and is very personable.

As far as the meds. I decided not to take them. I don't think that it is necessary. As long as the pain isn't too bad. Sometimes I just want to scream!

Your so lucky to go to MAYO. I often think about that. Your much closer than I am. It would be a little trip for me. I get new insurance in 90 days, I'll have to see if they will cover me then.

I went to the Neuro today for Nerve Conduction Testing, I'll go back on Monday for the results. At least the tech said that this will R/O about 4 more things.

Nyxie--Funny you should say that about the peripheral neuropathy I was just tested for this today. I do have food allergies but they have never given me a problem that I know of. I had this happen before about 20 yrs ago and it went away. They couldn't find it at that time either. This is so much more. It starts in my neck, shoulders, left side of my face both arms and both feet. It makes my head fell like a hangover--(not that I would know what that is like) LOL. And... I am heat sensitive. and have weakness sometime in my legs. I was on the couch for 3 months. In this first three months of being sick I thought it was the anemia, the head stuff. It wasn't until I was over the anemia that I realized I was still sick with this. Before I start my period now I feel like I have the flue.

The doctors only pick the symptoms that they want to listen to and address only those. When I ask questions they say you don't have this and that, it's anxiety. They are the one's causing this undue stress for me.

Monday I go back ( to doctor #9) and see what they have to say, and tell them I don't want their meds. I thought that I was a ********* getting off the Xanax with withdraws. That was crazy.

Sounds like maybe your thyroid might be acting up??? You think that it is food? Have you ever had allergy testing done. I used to take shots for it. Not for foods though. Thanks for your ideas. I'm going to go search for myself more on this tonight. Whatever I have came on 3 days after my DX with anemia 8.5 and Ferritin 2. Maybe it's just related to that somehow??? I'm really tired trying to figure things out. Thanks to you both for all your support. I will let you know when we figure something out. Until then......FLFLOWERGIRL:)





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