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Re: My B12 ordeal
Aug 23, 2007
asif139 -

I know exactly how you are feeling. When my illness was at its worst it felt like someone flipped a switch and suddenly my body just started shutting down I would lose complete control over my balance and vision. I had about a 10 min warning and it didn't matter where I was or what I was doing, but when it happened the only thing I could do was sleep for at least 2 hours. It felt allot like being drugged or prepped with anesthesia for surgery I had absolutely no control. For about a 5-month period (This was before we found out what was wrong with me and early on during the start of my shots) I couldn’t even drive and my family never left me unescorted. My vision was like watching a movie screen but someone kept moving the screen so I had no sense of where I really was or what was in front of me. One time I was so visually disoriented that I walked smack dab into the middle of the street right in front of an SUV (I still visually saw that I was right next to the car and never felt myself move). I still remember perfectly my daughter’s tone of fear when she yelled at me. Thank god the driver was paying very close attention.

You will notice so many strange things happening during your recovery. I felt like my own personal science experiment and every day brought something new. You will notice that a couple days after your shot some things with just feel a little better. Then a few weeks will go by and you will look back and realize that one little pain has been gone for a while and you didn’t really notice it was gone till just then (that’s a great feeling). I think it was about 4 months when I noticed that I was able to stay awake longer during the day. I was still tired but didn’t seem to get that crashing feeling so often (since you now seem to get it once a week – pay close attention and see if the last paragraph might apply). My advise is pace yourself do everything slowly and don’t rush. By about the 6th month I was back to a normal routine but still looked very forward to Saturday so that I could sleep for at least half of the day. Your rest during this time is important because the body is healing. I noticed that after the 5th month the sudden bursts of feeling better took longer to find – so don’t panic. Somewhere around the 8th month I decided to try and exercise. Big step if I might say so, and let me tell you I was able to walk all of 5 minutes – but it was an improvement so I enjoyed it as best as I could. Whenever I found it difficult to control my own actions I would stop and rest. For me my right leg would lose strength or just not do what it was being told to giving me the warning I was pushing myself to hard (by the way it still does it to this day). By about the 11th month I was up to 45 minutes on a ski machine that works your arms and legs at the same time.

Regarding the balance I still have some issues on that but nothing like before. And well something I have learned to adjust to. For so long I had to only look straight ahead when moving and no one could move in my side vision or literally I almost fell over. Once I was exercising for awhile and pretty much back to normal I slowly started to play racquetball which made me move quickly side to side and have to pay attention to the movement of a small little blue ball. This did help my brain to re-route its signals and learned to adjust to movement without making me dizzy.

The best advice I can give is learning to listen to your body. B12 to the central nervous system is like gas to a car without it nothing works. And since B12 is what makes the nervous system work – to much activity, thinking process and the brains way of taking in all the 5 senses to an understandable interpretation of what is around us will cause over stimulation and increase your symptoms. Watch for the triggers and avoid them during recovery – once your better then slowly start introducing them into your routine and the body should adjust.

Sorry for the length I tried to make it as short as I could. I wish you all the best – and again don’t hesitate to ask any questions.


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