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I too am confused as to whether the 'dark eye' issue is thyroid or anemia/low iron as both illnesses share a lot of the same symptoms. The fact that my eyes where puffy is what caught the attention of a few medical people as people with thyroid issues can have puffy or bulging or combination of both type eyes. What bothered me was that before i began the iron injections i got so bad that my entire eyeballs actualy hurt and if i touched around my upper eye lids my eyeballs felt swollen and often i would get that burning eye sensation when i closed my lids. I got to the point i wanted to simply take my eyeballs out and sit them in a cool glass of water!!

Now after the injections i still have slightly puffy eyes and darkish circles, but not as bad as before the injections. I will be 41 in Dec so do know that part of it is likely age related.

FLFLOWERS, you said that you take Synthroid but that your hair shedding is improving. I was just curious as i was doing a bit of research and read that some people who are on Synthroid end up with hair loss due to this medication as it's a side effect for some people or some long term users and that some users feel better on a drug which is a combination of T3 and T4, instead of just T4 which i think it said Synthroid was. It is odd that a certain drug is supposed to make you feel better and even help a symptom such as hair loss but an actual side effect of the medication can cause hair loss in some people.

I also read that taking evening primrose oil was of benefit for people who had hypothyroidism as the symptoms are similar to people who lack essential fatty acids in their system. The evening primprose oil is supposed to help with the hair loss symptom in particular. I thought it couldn't do much harm to add EPO so am adding that to my daily diet and we'll see whether there is any difference in perhaps 3 months or so. I have come across people on the Healthboard who highly recommend taking supplements with Omega 3's and 6's, saying it has helped their skin, hair and nails to no end.
Nyxie-thanks for all the information. What a hard road you have had. It does indeed get pretty tough out there.Besides working on the ferritin, thyroid , adrenals etc. have you tried any body mind techniques??I started tai chi about 5 months ago and I think it has changed my life. Of course it's only been 5 months but I find it so helpful. There is something about these ancient movements and getting out of my head and into trying to learn a movement I have never done and balancing at the same time--it has been a vacation from some worries and has really helped. Tai chi is ancient, there is a reason why people keep doing this-and I think it is that it is because it feels good. Maybe you could give it a try or perhaps some other form of body mind movement that appeals to you?
This last year has been medical hell for me, but I am hoping that things are now getting somewhat better. It has been very hard for me to get the kind of doctors on my team that I wanted to work with and it is a work in progress. But at least the pcp part is settled and that has made alot of difference.And, now I have more familiarity with the issues and know things I can improve- like the ferritin, vitamin d etc. I am so thankful to the wonderful and informative people I have shared with on these healthboards, I have really learned alot here and also been sort of stabilized by the sharing.After being on the boards for awhile- you know you are not alone going through this stuff!
I don't know if it was improvement in ferritin , vit d level or thyroid just having more time on correct dose and /or the tai chi- but I don't seem to be so in the dooomsday scenario camp . I have to say too that getting worked over , through various diagnositic procedures can really wear on a person. And, not to forget, I will have my colonoscopy chapter to write in about 3 weeks. Again Big Thanks to the wonderful people on this board who spoke about osmoprep and who told their story--very helpful information!!!!! This is a wonderful community here at the anemia board!
And last but not least I will have my ferritin checked again in the next few weeks. I got it up to 47 , I know this seems so high to those on this board who are starting from 8 or so. Well, I will see if after 2 months no iron supplements whether it has declined. I had to stop the iron for a bit because I was going through a bad gi disturbance and the doc felt the ferritin was ok and wanted me to just stop anything that might hurt the intestinal tract. The weird thing was that apparently it was a viral thing that damaged the lining of my gi tract and then made me lactose intolerant. They think the lactose intolerance will diminish in time. But for now , I am getting my calcium through supplements and have gone back to 18mg ferrous fumarate a day.
Sorry to go on so long- you would think I was hyper which I know I am not at this time





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