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Hello everyone, I cannot tell you how relieved I was to find this board!
I have been "officially" anemic for about 2 years. My first PCP sent me directly to the hospital for a 2 unit transfusion, it helped, but only for about 3 weeks. I then went back to my old PCP who was monitoring my dropping iron levels, she then referred me to a hematologist who immediatley had me begin IV iron once a week for 4 weeks. My original count was a 5.9, I am now up to 10. Sounded great to me, however, I have not felt any better. The side-effects from the IV iron are so severe and almost incapacitate me. She reported that I need at least 5 more treatments of the IV iron because my ?? was a 2 out of a 100???? Basically that my bones are not absorping the iron. I feel worse today as I write this then I have probably ever felt. It takes everything I have to get out of bed in the morning and daily tasks like grocery shopping are enough to sent me directly to bed! My hair is shedding, it has for years, just more now, my toungue hurts??? My body aches and my head pounds.
Anyone out there with anything similar? I thought i should be feeling MUCH better, but I keep feeling worse and worse!
Sorry to go on and on, any feedback would be so very much appreciated!:)





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