It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board


Anemia Board Index
Board Index > Anemia | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


Hello all. I have been dealing with several symptoms for about a year now. I have posted here a few times and also on the Thyroid Board.

For the past year, some of my symptoms have been, ALWAYS tired and fatigued with NO energy to do anything. I am tired when I am sitting, which is pretty much all I do now a days because I have no energy to get up and do anything. I have lost weight ... lost about 30 pounds since the beginning of the year, am down to 125 pounds now and I have NEVER tried to lose weight. I keep trying to eat things now to gain weight, but I am not gaining any. I have sporadic bouts of high blood pressure which the doctors have done several tests for, but they came back normal. My arms and legs fall asleep VERY easily. If they are in a certain position for a few minutes, they will fall asleep. My hair is BIG TIME THINNING!!!!!! I am always cold or sweaty hot. I get brain fogginess, I feel like I forget things and cannot remember things like I used to. Like I will know I have to get something when I go into a room, I will go to the room, and forget what I am there to get, it is driving me crazy!!! I never used to be like that. There are times I get so tired from just walking up the stairs, sometimes my heart will beat really fast after I walk up the stairs too. It doesn't happen all of the time ... and I never know when it will happen, it just happens. Like I get to the top of the stairs and I am out of breath and my heart is eating really fast. My eyes have been doing this weird twitching back and forth thing ..... they both do it at the same time and they move back and forth really, eally fast. It will do it for like maybe 2 seconds, then it will stop. I am like ... what the heck is wrong with me!!

Have been back and forth to the family doctor, tested my thyroid, all came back normal. Did a full blood panel, all came back normal. Did cortisol tests, they came back high ... doctor says that because I have back problems, and am always in pain from my back, that could be why my cortisol levels are high. Have some hormone testing done .... FSH came back a little high, LH came back normal, Testosterone came back on the low side of normal, was 28. I had my Ferritin level checked the other month ... someone mentioned to me to have that done on the board here. I believe my level came back at like 20, 21 or 22. I don't have those results in front of me at the moment, but it was one of those numbers. People mentioned to me that my Ferritin level could be why my hair is thinning. I went back to the docs, told her what people were telling me. She said she doesn't go by Ferritin levels. She goes by what the Blood Panel results are when it comes to Anemia.

She then sent me to an Endocrinoligist. I went there last Friday. This doctor was not of any help either. She doesn't know why I am having all of these symptoms. She said I have several groups of symptoms, but when she thinks my symptoms could be one thing .... the other group of symptoms rule out what she was thinking. So she told me she was at "Aw" and doesn't know why I am having the symptoms I am having. I was like ok .... I left there and was MAD!! I was thinking, you are the specialist .... you know my symptoms, yet you can't help me?? Ohhh the one thing she did say was ... I could be lacking in B12, that could be why my hair is thinning. She even looked at my hair and used her hands through it to look at spots, and she was even saying .... "yes, you do have a lot of thinning spots through out your head". I was thinking ... UM YEAH! It's been big time falling out for months now. Soon, I am not going to have any hair and I am only 34 years old!

Anyway .... I go home and of course was mad. I figured I would try to order the B12 test myself. So, found an online lab, ordered the B12 test, went yesterday, had the blood drawn, and got my test results back today. Well, my B12 is low. I am just not sure if it is low enough to cause any of my symptoms. My level cam back at: 172. The normal lab ranges for B12 on the lab report is: (211-911).

I faxed them over to my family doctor and to the endocrinologist. I am not sure if they will do anything or not. Does anyone here have any information on B12 or any experience in B12? Is my level just a little below normal? Could my level be causing my symptoms? If you have any information or advice for me PLEASE let me know. I would GREATLY appreicate any advice. Thank you!!

Tifferz
Tifferzz- Sorry to hear about your trouble with the docs. I have had my share of that too. My endocrinologist wanted me to supplement with 325mg iron daily when my ferritin was 38 , so for sure I think your doc should get you started on iron supplements and then monitor your levels till you get in a good range. What the good range is seems to be subject to interpretation but I think 70 from my reading seems to be a threshold for real improvement. From what I have read alot of aches, pains and hair loss may be associated with low ferritin.
Also if you haven't had your vit d level checked it is a hugely important thing to do. My vit d was way low a 19, that was terrible. Vit d deficiency can also cause alot of aches and pains . You may want to check out the vitamin d council on the net. The phds and mds that are on the vitd council are world class scientists and affiliated with major universities. They think that proper vit d levels are critical for health and that deficiency can lead to greater chance of various cancers, autoimmune disorders , ms etc. etc. When my vit d and ferritin level increased I felt so much better. Much less of the aches and pains . Also I had leg pains at night for several years and they have just stopped. I am shocked. Because I moved the vit d and iron up at the same time, I won't ever really know which helped or whether it was the combination. In any event be sure to get your vit d level checked and do something about your ferritin.
I am hypothyroid due to hashimoto's autoimmune disorder and also have osteoporosis. I have to get these deficiencies dealt with to try to achieve a level of well being and health. I have burned through docs in this quest to get help. I am now finally feeling that it is coming together. So I know your frustration.
I think your gp is , according to what I have read, incorrect on not going by ferritin and instead just looking at blood panel for anemia. From what I have read anemia is the end point. Low ferritin will show you are moving in that direction. Which you are by the 20 ferritin number. So why wait till anemia. Others on this board will agree with this for sure. It is so hard and time consuming to get the ferritin up. To me, it seems your doc is not helping you but giving you frustration. Could you change docs??
On the B12 , I have supplemented for about a year. I take b12 in a multivit and also now take a sublingual(dissolves under your tongue) b complex tab with b12. All this contributed to a very decent b12 number on my labs, so maybe with supplementing you could bring yours up. From what I have read though some people have trouble taking in b12 or utilizing it due to some metabolic issue and thus can have pernicious anemia. I don't know if this would have anything to do with your situation. Maybe you should look at that as well.
Also I wonder about your extreme fatigue and weight loss. Something doesn't seem right. On your thyroid, what was your tsh level?? As to the weight loss, do you have any intestinal problems- cramping, diarrhea etc. Are you taking in enough calories?
Don't give up tiffer. You are going to need to push forward to get yourself the help that you need. We will support your effort here!
Hi there osteoblast and thank you for responding! Yeah, some people on the Thyroid board here told me to get m Ferritin level tested, so I did and then it came back that low. I went and got all of my lab reports. I had my ferritin level checked on August 08, 2007 and my level was: 21 ...... the normal lab ranges on the lab report are: (10 - 291). But people have told me that is still to low and it should be between 70-90 in women. Although, my family doctor said she doesn't go by that .... she just goes by the regular blood panels for anemia. So, I was like ok. The Endocrinologist also did not say anything about my low ferritin levels when I saw her last week .... Grrrr!!

Yes, I have my new Thyroid results. I will post them here. I was getting ready to post everything on the Thyroid board too. I will post them here first.

October 03, 2007

TSH: Mine Was: 1.110 ........ Normal Lab Results: (0.350 - 5.500)

Thyroxine (T4): Mine Was: 7.4 ....... Normal Lab Results: (4.5 - 12.0)

T3 Uptake: Mine Was: 34 ...... Normal Lab Results: (24 - 39)

Free Thyroxine Index: Mine Was: 2.5 ..... Normal Lab Results: (1.2 - 4.9)

Thyroxine (T4) Free, Direct: Mine Was: 1.14. Normal Lab Results: (0.61 1.76)

Antithyroglobulin Ab: Mine Was: <20 ...... Normal Lab Ranges: (0 -40)

Triiodothyronine, Free, Serum: Mine Was: 3.6 .... Normal Lab Rages: (2.3 - 4.2)


Vitamin B12 and Folate

Vitamin B12: Mine Was: 172 .... LOW .... Normal Lab Ranges: (211 - 911)

Folate (Folic Acid), Serum: Mine Was: 8.7 ...... Normal Lab Ranges: (>5.4)


Those were my results I got back today. I was reading on low B12 a little bit, and it said that low B12 can cause fatigue and weakness, hair thinning, the brain fogginess and weight loss and a couple of other symptoms. I am still trying to find more information on the B12 stuff. Maybe my problem is the low ferritin and the low B12. Heck, maybe they should just check all of my vitamin levels! I never knew about the D vitamin. Maybe I should have that checked too!! I think my thyroid results are all normal right?
Tiffer-Yes maybe alot is due to low ferritin , b12 and possibly vit d. I think other's will say your docs view on the ferritin is bizarre! Ferritin is to me like the gas tank level, anemia is like out of gas. Why not get the ferritin up instead of waiting for anemia. You are probably aware that ferritin is a measure of your iron stores--thus like a gas tank.
I am no expert but the thyroid levels seem to look ok.Others at the thyroid board are probably better to respond to that.
And, yes your b12 needs help that's clear from your labs. Provided you do not have a problem with b12 metabolism, then b12 supplementation should help. But, if it is a metabolic issue then that would need to be looked at.
Also the ferritin issue is somewhat the same way. If your iron stores are low, then the thing is to find out why. I am a vegetarian so the thinking is that it is my diet. I did have an endoscopy and will soon have a colonoscopy to be sure no internal bleeding . So, when the ferritin level is low - the cause should be looked at. Maybe it is dietary, maybe it is not. Your doc doesn't seem to have any curiousity about it though. With your symptoms and labs a doc needs to sit up and take notice and get moving on it.
Since you had the b12 test done on your own, I think you should just do the vit d- it is called 25oh test. On the d , as with the ferritin, you do not want to be at the bottom of the range. Check out the vit d council - I believe it's something like 50-60 they recommend. We have talked before here about docs who let you sit at the bottom of the range --it just doesn't make sense.
You didn't say about your weight loss as to whether you have any intestinal issues that may account for the weight loss -any suspected bowel disorder??
Are you taking in enough calories??
It sounds like you are highly motivated to feel better- that is half the battle, now you need to get the docs to do their job. Can you change docs??
Hi there Isis498, you are 100% right about that!! I have read online that doctors learn about B12 stuff and the side affects of low B12 on people during their FIRST year of Med. School. I guess these doctors just forget?? I am just sooooooooo glad that I took up for myself and paid to get my B12 tested on my own! I do have insurance ..... but paid for this on my own because it seemed like I was getting NO WHERE with all of these doctors and other tests. The only reason I knew about B12 was when the Endo. doctor said "well you could be low on B12, that could be why your hair is falling out". She SHOULD have tested me! I shouldn't have had to pay for it out of my pocket. But actually ... I am glad I did, otherwise I would be back to square one. Not knowing what is wrong with me! Now, everything is coming together!! I am so happy about that. I will be even happier when I am back to my old self. I cannot wait for that day!!!!!

Do the shots hurt when you get them?? How long does it take for you to start feeling halfway good again after the start of getting the shots? I have an appointment with a Hematologist on October 29th. Will be my first appointment with one. It was actually a funny story how I got the appointment, but I don't wanna bore anyone or right a REALLY long post like I always tend to do LOL.

I also just went today ... for a few more blood tests. I had another CBC done. My last one was back in June 2007. Then I have never had an Iron test with TBIC?? I think thats the name of it. So I got that and then I got another Ferritin level. My last Ferritin level was 21 back in August 2007. I should have the results back tomorrow. So I am curious to see what the Iron test shows.

I hope you start feeling better REAL soon Isis!! Ohhh and one more question for you ..... how often do you have to get the B12 shots? Thank you!! :)
[QUOTE=Tifferzz;3253769]Hi there Isis498, you are 100% right about that!! I have read online that doctors learn about B12 stuff and the side affects of low B12 on people during their FIRST year of Med. School. I guess these doctors just forget?? I am just sooooooooo glad that I took up for myself and paid to get my B12 tested on my own! I do have insurance ..... but paid for this on my own because it seemed like I was getting NO WHERE with all of these doctors and other tests. The only reason I knew about B12 was when the Endo. doctor said "well you could be low on B12, that could be why your hair is falling out". She SHOULD have tested me! I shouldn't have had to pay for it out of my pocket. But actually ... I am glad I did, otherwise I would be back to square one. Not knowing what is wrong with me! Now, everything is coming together!! I am so happy about that. I will be even happier when I am back to my old self. I cannot wait for that day!!!!!

Do the shots hurt when you get them?? How long does it take for you to start feeling halfway good again after the start of getting the shots? I have an appointment with a Hematologist on October 29th. Will be my first appointment with one. It was actually a funny story how I got the appointment, but I don't wanna bore anyone or right a REALLY long post like I always tend to do LOL.

I also just went today ... for a few more blood tests. I had another CBC done. My last one was back in June 2007. Then I have never had an Iron test with TBIC?? I think thats the name of it. So I got that and then I got another Ferritin level. My last Ferritin level was 21 back in August 2007. I should have the results back tomorrow. So I am curious to see what the Iron test shows.

I hope you start feeling better REAL soon Isis!! Ohhh and one more question for you ..... how often do you have to get the B12 shots? Thank you!! :)[/QUOTE]

When I first found my low level, I had to ASK for the test, my Drs. never even thought to do one, even with all the problems I was having. :( My Grandmother had PA and I wondered about it.

My hair is falling out too at the moment, bad. :mad: I hope it comes back.

The shots aren't bad at all; my DH gives them. I am on 1 a day for a week, then 1 a week for a month. Then 1 a month indefintly.

I have read, and also been told it takes up to 6 months or more to start to really feel better and neurological damage to correct itself. If you have had it too long, it may never correct itself.

Good luck to you, let us know how your tests come out.
Hi ALL, and thanks for responding Isis498, ChristineVA, and alaska_free, I appreciate it very much!! Isis, I heard that the B12 shots "sting" when they go in. Is that true? Also if that is true, how long does the sting last? I don't like watching needles go in me and even when I get my blood drawn, I look away. I am a baby LOL. I don't like things that hurt either .... BUT .... if the shots will help me get better .... faster ..... then I will do them definitely. The sooner I am back to myself .... the HAPPIER I will be. I am going to throw a BIG party when I am back to myself LOL. But .... before my party I want to make sure my old self is back .... (The OCD me where my house is spotless)!!! Clean my house, have my HAIR BACK, it is sooooooo thin right now, it makes me sad. My hair is straight ... and when I do it after I shower and I turn to the sides, I can see my ears through my hair. Like not my full ears .... but I can definitely see my ears. I hate it. I am soooooo ready to do things other than SIT all day long. I want my energy back. I am tired of sleeping 10 hours a day. I am tired of sitting in a chair, and I just fall asleep .... I don't even want to fall asleep but I get so tired sitting, that I just fall asleep. I want to be more into my daughter .... like I used to be. I used to remember everything .... ALL school stuff. I cannot remember things like I used to. I see her bring home a school paper. I keep it to the side and say to myself, "I need to remember this". Well, most of the time ... I forget. I have no energy to go to her sports games, which makes me REALLY sad. I don't think a lot of people TRUELY understand how dead tired this makes you. They think "oh she's just tired", but they have no clue. It's not that I am just "tired". I seriously cannot get up and do ANYTHING. But oh well, here I go into a long post again LOL ...... SORRY!!


As I was saying lol .... I was thanking all of you for responding and asking about the B12 shots stinging. Christine .... yeap my Dad told me about the B12 thingies that you stick under your tongue. I am hoping to do something like that after I see the doctor. I just wanna wait till after I see the Hematologist, that way he can tell me if I need the shots first to get my level up, or if I can just to something like under the tongue. I am thinking he may want to do the shots for a little bit since my level is pretty low. So, if he does the shots at first ... once I am regular, I will definitely do something like those things you stick under your tongue. I don't like the idea of getting stuck with a needle ALLLLLL the time, eeeekkkkk!! :(

Ohhh, also alaska_free, I wish I could just call my family doctor and get B12. But .... she has NOT called me back since my B12 results. She probably does not think that low B12 is a problem. She didn't think my low ferritin the other month was a problem. She said she doesn't go by ferritin levels since my CBC came back normal. But yeah, I did ask to have her call me, and a week went by, and no phone call back. Sooooo, that is when I took it amongst myself, to find a Hematologist. I called them and I said "can I set up an appointment on my own or do I need to have my family doctor do it". The lady was nice and said "normally your family doctor would call and set the appointment up IF you have never been seen by our office". I was like "Oh ok". Then the lady said "why, are you having a problem"? I said "well kinda". She then asked me what was going on. I explained to her that we have been trying to figure out what is wrong with me for the past year. I said we just found out last week that my B12 is low. The lady then asked what was the results. I said my results came back at 172 which was low on the lab report. She then said "have you had other blood work done"? I said yes. She said "how did that come back"? I said well I had some cortisol tests, they came back high. I said some of my hormone testing came back high and my testosterone was on the low side. I then told her that my CBC came back normal, and then I said my Ferritin test that I had done in August came back on the low side. She then said "what was your Ferritin level? I said it was 21. So, she said "can I put you on hold, I am going to call over to the lab and tell them about your B12 and Ferritin levels and I'll see what they say". I said ok. She came back on the phone and said "I talked to the senior lab tech, and he said that with your levels you do need to be seen, so I am going to go ahead and set up an appointment for you". I said ok. Then she said "call your family doctor and tell them you have an appointment with us and ask them to fax over all of your labs and physician reports over the past year". I said ok.

When I called the family doctor, I got a receptionist. I told her about my up-coming appointment. She was like "did we set this up for you". I said no, I have been waiting for the doctor to call me back but it's been a week and I haven't heard from her, so I called and asked if I could make the appointment on my own, and they said with my levels of low B12 and low ferritin that I need to be seen". The lady didn't sound to happy ... but oh well. I am tired of feeling this way. I wasn't getting anywhere before, so I have to do stuff on my own!! So, I am pretty sure the Hematology place set me up with the appointment for the first available appointment that they had available, and that was the October 29th appointment. Trust me ... I wish I could get in sooner!!

I know I am writing a book her ... sorry!! But ... I need to post one more thing. I just got my labs back from yesterday. I am going to post them here. My Iron stuff came back in the normal ranges! It's weird that you can have Low B12 and Low ferritin but normal Iron stuff. Here is my new blood work, ohh and my Ferritin level dropped since August too!

[B]October 11, 2007[/B]

[B]CBC With Differential/Platelet[/B]

WBC: 6.2 ------ Normal Lab Ranges: (4.0 - 10.5)

RBC: 4.43 ----- Normal Lab Ranges: (3.80 - 5.10)

Hemoglobin: 13.5 ----- Normal Lab Ranges: (11.5 - 15.0)

Hematocrit: 39.8 ----- Normal Lab Ranges: (34.0 - 44.0)

MCV: 90 ----- Normal Lab Ranges: (80 - 98)

MCH: 30.4 ----- Normal Lab Ranges: (27.0 - 34.0)

MCHC: 33.9 ----- Normal Lab Ranges: (32.0 - 36.0)

RDW: 12.8 ----- Normal Lab Ranges: (11.7 - 15.0)

Platelets: 336 ----- Normal Lab Ranges: (140 - 415)

Neutrophils: 36 - LOW ----- Normal Lab Ranges: (40 - 74)

Lymphs: 49 - HIGH ----- Normal Lab Ranges: (14 - 46)

Monocytes: 7 ----- Normal Lab Ranges: (4 - 13)

Eos: 7 ----- Normal Lab Ranges: (0 - 7)

Basos: 1 ----- Normal Lab Ranges: (0 - 3)

Neutrophils (Absolute): 2.2 ----- Normal Lab Ranges: (1.8 - 7.8)

Lymphs (Absolute): 3.0 ----- Normal Lab Ranges: (0.7 - 4.5)

Monocytes (Absolute): 0.4 ----- Normal Lab Ranges: (0.1 - 1.0)

Eos (Absolute): 0.4 ----- Normal Lab Ranges: (0.0 - 0.4)

Baso (Absolute): 0.1 ----- Normal Lab Ranges: (0.0 - 0.2)




[B]Iron and TIBC[/B]

Iron Bind. Cap. (TIBC): 333 ----- Normal Lab Ranges: (250 - 450)

UIBC: 258 ----- Normal Lab Ranges: (150 - 375)

Iron, Serum: 75 ----- Normal Lab Ranges: (35 - 155)

Iron Saturation: 23 ----- Normal Lab Ranges: (15 - 55)




[B]Ferritin, Serum[/B]

Ferritin, Serum: 10 ----- Normal Lab Ranges: (10 - 291)



* Thos Are My Latest Lab Results As Of October 11, 2007, Then My B12 Was 172 last week *

Sorry about the book I just wrote!! Just wanted to respond to those of you who posted, and give some answers and also post my latest labs. If you see anything or have any comments, PLEASE post them to me! Thank you!!

Tifferzz :)
Hi there again Isis and osteoblast. Yeap osteoblast, I was determined to figure out what is wrong with me. I mean I knew it wasn't normal to go how I was ... to how I am now. I was tired of Doctors saying it could be this, it could be that and not test me. I was tired of Doctors not figuring it out. I mean it is their job to figure out what is wrong with us. I think if it wasn't for this message board and me being determined .... who knows where I would be right now. I would probably be a little guinea pig, just sitting here with no energy, listening to what doctors tell me. Telling me ohhhh, your levels are fine. Or oh I don't go by that on a lab report, I go by this. I was also thinking I was just getting old. I am 34 but I was like thinking to myself .... maybe this is what it feels like to get old?? This message board has helped me a lot and I learned sooooooo much from a lot of people here, so thank you all. I don't post all of the time, but I do read different sections of this board just about every day. Good luck with your up-coming appointment osteoblast!! It sounds like you will be going to an awesome place!! I will definitely keep in mind the supplements after my initial appointment with the Hematologist. I just don't want to take anything yet .... because I am not sure what tests he will do. I don't want to alter any tests that he may have planned and I want to make sure nothing else is causing my low ferritin levels and low B12. And ohhhhhhh I love Dr.Oz!!!!! He is awesome!! I will definitely check out that book that you mentioned, thank you!!

Isis, yeah I am curious to see why my B12 is low. I am not a vegetarian and I never have been. I eat meats and eggs and I LOVE dairy!! So, yeah I am curious to figure out why. The only other medication I am on is Percocet. I am on that for my lower back problems. I have had back problemes for yearsssss. I need an anterior/posterior spinal fusion. I don't want that right now, so I am on percocet until I decide to do the surgery. That is how I originally found this board a few years ago. I would always post in the back problems section. I was on Birth Control Pills until the end of August 2007. I am not on B.C. anymore and am just on percocet for my back. I am glad that the B12 shots don't hurt much. I was worried .... I was reading that they sting and stuff, and I was wondering to myself .... how much do they sting?? LOL. Wow your B12 is REALLY low too!! Do they know the cause of your low B12??
Hi olwynUFO :) Yeah .... that is what I am going to do. I am sure the Hematologist will want to do the shots on me at first. At least from what I have been reading lately ... that is what he should do, so we'll see what he says at my appointment. I hope I am not getting all excited here, and I go there and he turns out like some of these other doctors!! I will be sooooo mad. Although, from how the office staff was on the phone the other day ..... I don't think they will be like other doctors. I mean they scheduled the appointment for me without my family doctor calling them, after I gave them my lab numbers. So that was good! I just hope and pray that they are good and will listen to me and help me figure it out and get me on the right track.

Also it is soooooooooo good to hear about the "cyano". I am afraid of the sting LOL. I am a wuss when it comes to that stuff!! Wow, that is interesting about the acne .... I wonder why the B12 caused that? Is that a side affect of the shots? Eeeekkk ..... give my hubby a needle?? That is scarey, ha ha ha. He may try to get me back for being so irritable lately LOL. I have been reading that it can take awhile to feel better and not be so tired after giving your body the B12 it needs. I think I am thinking "oh, I will get the shots, in a week I will be back to myself". I better stop thinking that way! I am glad that things are looking better for you olwynUFO!! I am glad that the symptoms don't last long now and also glad the fatigue is starting to get a little better for you. I hope it continues to do so :)

Have they figured out why your B12 was low? Did you have anything else that was low or high? Like low ferritin or anything like that?
The only other thing that tested low for me was B6, so I'm taking a B-complex vitamin every day. My ferritin was 89 (10-232ng/mL), considered normal. I take Flintstone chewables; I read about them on this board. I've been a vegetarian for ten years and a vegan for three, and I never bothered taking vitamins before this. I've reintroduced dairy into my diet, but I'm afraid to eat meat besides fish. I used to eat lots of soy, but I've given that up since I've read how it can wreak havoc on your thyroid.
Hey all, I had my first appointment today with a Hematologist. They were all soooooooo nice here!! The whole staff was nice and the Doctor was really nice. I spent all but an hour and a half there ..... and it wasn't from long waiting. I first got there and signed in and all of that stuff then they took 3 things of blood from me. They did just a real quick CBC ..... it may not have been a complete CBC, but they ran the blood (the lab is right there at the office), so they ran the blood and by the time I went back to the room and the Doctor came in, they had run some of my blood for a quick work up. Those numbers were pretty much identical to the CBC I had just recently posted here. I think it's earlier in this thread.

Anyway ... this Doctor spent a lot of time with me, which I liked. He didn't rush us out, he took his time and went over everything .... all of my symptoms, all of my recent blood work etc. He said that my Iron Stores (Ferritin) are all but depleted. My Ferritin was at 10 a couple of weeks ago. I was sooooo happy to finally have a doctor care about Ferritin levels!! He had asked if I noticed any blood in my stool, and I told him I have been looking and haven't seen anything.

Soooo, since they took extra blood from me when I first got there, he is going to re-test my B12 and see where that is at. It was 172 a few weeks ago. He is also testing me for "Pernicious Anemia". The weird thing though is ... I thought they test you for "Pernicious Anemia" through a Urine Test?? I think it's called a Schilling Test or something like that?? Well, he said they are testing for "Pernicious Anemia" from the extra blood that I had drawn. Can they test for that with a blood tesT?? He also said they are testing like some kind of Antibodies and something to do with Gastric something or other?? They are doing it all through the blood that I had drawn. Does that sound right to those of you that have gone through this ?? I go back next Wednesday to get the results back from those tests that they are running.

My only other question is ..... does "Pernicious Anemia" also cause low Iron stores?? I am just wondering if my Low B12 and my Low Iron stores are from a related problem?? Or do you think they are two seperate things that we need to make sure the Doctor looks at? I mean this Doctor is nice and all so far .... but I want to make sure I am asking him everything I need to be asking and making sure he is testing for everything he should be testing for. This stuff is all BRAND new to me, so I am not totally 100% sure on it all yet.

Hopefully you all will re-read this post and can answer my questions, if not I will try posting a new thread about it. But if you all know anything about my questions, PLEASE post what you know. Thanks in advance for any help and suggestions that you can provide to me!! :)


Tifferzz
You give great information catscandance, thank you!! When I was reading your last post and you said about your daughter having "mitral valve prolapse", I remembered seeing that on my Echocardiogram report. I do not have a prolapse but it says something about "mild to possibly moderate mitral regurgitation with no evidence of mitral valve prolapse". Then it says something about "trace tricuspid regurgitation with PA pressures of 20 mmHg".

I am wondering if I do have Prenicious Anemia and I wonder if that is causing those little things with my heart? I know it is not anything major, but I am wondering now that you said that about your daughter, I wonder if they are connected some how?? I also wonder if ..... I would have just listened to the doctors when alll these other tests were coming back normal and if I wouldn't have persisted that something else IS wrong .... could that lead to a valve prolapse all together?? All of the doctors did keep thinking it was a Thyroid problem .... I had the Thyroid tests run like 3-4 different times by the different doctors, but they still keep coming back normal. So they didn't know what was wrong with me. Thankfully for these message boards ... people started mentioning B12 and Ferritin ...... and they were telling me I should have these checked. That was when I had them tested and sure enough they were both Low.

Ugghhhh I can't wait until next Wednesday to get my test results back!! I wonder if I can call and ask for copies of the blood work from the other day?? I wonder if they would give it to me or if they wouldn't since I am being seen next Wednesday to go over the results. Hrrmmm, maybe I could try and see if they will send me the copies awhile that way I know if I have PA or not before my appointment next week.

Hey CTweet, I am all with ya on the "Big Bruise Foundation", LOL. :D I can't wait until I can see myself without ANY black and blue marks!! I am so used to them now .... it's just like ... oh there's another one, oh and there's one too or hrrrrmm, where did that one come from? It's kind of part of me now LOL.





All times are GMT -7. The time now is 09:50 PM.





2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!