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Yes, I've thought of that--the more I read about it the more I realize that I've had diffuse symptoms that weren't ever put together (not by me or the doctors) that I attributed to "getting older" (I'm 33 and in otherwise good health!)

I'm realizing that many of these symptoms are likely caused by malabsorption problems (lack of vitamin K = easy bruising, low B12 = tingling in arms & legs, ...) I also found out I have exceptionally low cholestrol (97!) but I attributed this to my healthy diet... Now I worry that I will gain weight when I start absorbing food well again. I've often noticed that I eat the same amount of food as my friends who are overweight, and if anything, I'm underweight (or on the very low end of normal).

There is still a 5-10% chance that I don't have celiac. The blood tests were very HIGH positive, but there are false positives, so I won't know for sure until after the biopsy.

I'm not thrilled about the prospect of being gluten free, but I know there are so many worse things that it could be. I know many other people with autoimmune disorders (RA, MS, etc.) that are not treatable and progressively get worse. This at least is treatable, even if the treatment isn't easy and will make me feel like a bit of a freak.

So my new anemia question is this--if I do have celiac, and it will take ~1 year for my intestine to recover, is it pointless for me to be taking all this oral iron if I can't absorb it anyway? Should I be getting infusions or something else?

Stephanie





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