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I have been getting iron infusions about twice per year for the last two years. This last one (which I had today) was at about 9 months and my iron levels weren't too low this time so it was a little better. The doc just wanted me to get a refill before I dropped dangerously low, which I had in the past. My ferritin was at 4.9 about a month ago and today my hemoglobin and hematocrit were just below the low end of normal, which actually isn't too bad for me. When I first started having trouble with anemia, my rheumatologist (for fibromyalgia) measured my iron and let it get pretty low before sending me to a hematologist. It was 2 years between my first iron infusions and just a year for the next and that is when it had dropped dangerously low so that now I see the hematologist for blood work every 3 or 4 months to keep an eye on things and get my set up for the iron infusion before the problems get too bad.

Todays was very quick. Less than four hours and I even had a little mishap. Thanks to the benadryl they give me, I dozed off and managed to get my IV caught up on the blanket and pulled my IV right out of my hand. Blood and iron were flowing everywhere, kind of upsetting to the guy next to me getting chemo. I really made a mess. It took a good 20 or so minutes to reset. Not sure why it was so quick this time but I am guessing they sped up the dosing. Someone else mentioned that the got a little sick with the higher dose and I did notice that for the first time they said they had included Zantac in the anhistamine/steroid IV, so maybe that was to help my stomach. They also gave me tylenol for the first time. I take Nexium so the Zantac kind of surprised me. I should have asked about it and the tylenol, but daylight savings time and the anemia, had me sort of out of it this morning. Thanks to the steroid,I am doing great now. It will take several weeks to feel relief from getting the iron levels back up.





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