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irisheyes39--I understand your post completely. I have many if not all of your symptoms. Yes, heavy periods for two years can in fact cause this to happen. Things like these go on for many years until the ferritin is drained and anemia (the last stage of iron stores) sets in. Same with B-12.

Neuro feelings, numbness, tingling and pain are usually related to a B-12 deficiency (or other vitamins and minerals), although I do not have a B-12 def myself. Your B-12 is low, they say under/around 400 CAN present symptoms although docs say 200 is normal. Craving strange non food substances and hair loss are related to iron.

There can be more than one reason for anemia or low numbers or even several. B-12 and Folic Acid usually point to a different type of anemia other than iron deficiency anemia (due to fibroids, heavy bleeding), i.e., PA Pernicious Anemia, Celiac disease (AI disease), gastritis, malabsorption and other things. B-12 can last 2-5 years w/malabsorption going on before levels go down. As far a B-12 is concerned the reasons for the deficiency can be divided into 3 cats. 1. Nutritional def. 2. Malab syndromes 3. Gastro causes. A GI doc would be the one to see for this.

You should have a ferritin test to know where you stand with your iron stores. You can have B-12 def and IDA at the same time. If you cannot tolerate iron supplements there are types that are RX and have some have none/little S/E's. I take Poly iron 150mgs that is a different type of iron for this reason. I have no S/E's. You can ask your doc. You just have to try until you find one that is right for you. But you do have to replace the iron because it makes the blood.

As you mentioned the MS perhaps not being correct. I would think that you have had all the test that would back the diagnosis. I know that the symptoms of anemia are much the same as many other things like thyroid disease, so I would also have that checked if not already. Hope this has helped. FLFLOWERGIRL:)
[QUOTE=irisheyes39;3558398]Flflowergirl, Need some more advice and encouragement. I got the rx today for Niferex, same thing as you I think. I also got another B12 shot today and feel pretty good, a little tired but still good. I have been pondering something and worrying about taking this iron. If my problem is B12 do I still need the iron?

[B]Iron supplements will correct an iron def. anemia, but will NOT correct PA. B-12 injections are required for that. B-12 will reverse the production of abnormal red blood cells.[/B]

I don't understand that connection to well, but will the B12 shots bring my iron up too?

[B]Only iron through supplements or food sources will bring up your iron levels. Iron stores (Ferritin) reflect the amount of iron stored in the body for later use to make healthy red blood cells. When depleted, iron def. anemia sets in, this is the end stage of the stores.

It is not uncommon to have both IDA and B-12 def. at the same time. What did your doctor tell you that you had?[/B]

Guess I am a chicken when it comes to taking new weird meds, always afraid of SE.

[B]Be brave and just try it:D. How much did your doctor recommend you take? If 2 daily is recommended I would start out with 1 and see how it goes for you. It works well for me and I am ULTRA SENSITIVE! FLFLOWERGIRL:)[/B]

Yes, do take the iron. I actually felt better when I took the iron on an empty stomach verses with food. I think this is due to the fact that it takes so long for food to digest and the iron sits there longer causing upset. Drink lots of water when you take the supplement and this also gives you a much better chance. This iron is a special iron for people that get GI upset that is why it works so well. If you take the recommended dose you probably won't have constipation at all. The higher the dose the opposite effect when taking iron. When I went down to 1 daily I really had to start watching my diet because of my thyroid, I have a problem with constipation on a regular basis if I don't watch the diet and drink lots of water.

I felt like death for most of the year until my ferritin hit 20 and then I started to feel better but NOT good perhaps good compared to death. I was actually anemic for 6 months. My ferritin was a 9 and under for 7 months, it went form 9-20-35-43. When I first felt better I was extremely excited, it just takes so long for some people. I still don't feel good yet on a regular basis. I had a lot of MS symptoms that have gone with the iron replacement but some neuro stuff persists and the doc say it's anxiety which it is not. So I think that there is more going on with me than they can figure out. MS was ruled out but not by an MS specialist. I have a lot of symptoms that wax and wane that are consistent for B-12 def. but that is not the case either. My ferritin was 43 last checked and I continue to make positive progress so they think all is well. I still do not feel that I can return to work though that is my goal. Jan. was a year for me.

Hoping that you have a much quicker recovery. FLFLOWERGIRL:)
It would be normal if your are IDA and B-12 def at the same time which is very common. I have a friend that has both and she takes Poly Iron 150 1 X daily and B-12 shots and sublingual. FLFLOWERGIRL:)

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