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Hi, I am new to the board. I have had iron deficiency anemia for about four years now without any identifiable cause. It was initially blamed on heavy periods and fibroids but I had a myomectomy and the anemia persisted. I did oral iron for a year without improvement.

I was then started on IV infed after a large GI and hematological work-up. The infed almost did me in on the first dose. No more infed after that experience so I was switched to Ferrlicet. I have been taking the Ferrlicit for 8 week courses every 4-6 months. I was reacting to the Ferrlicit but it was controlled with lots of IV steroids and IV benadryl.

At the end of last year, I had a severe reaction that could not be stopped and was hospitalized for several days. I was then told no more IV Ferrlicit and that they were not willing to try the final preparation, Venofer. I have since had several blood transfusions.

A couple of weeks ago, I was sent to see a new hematologist and he wants to try to give me Venofer. I really wanted to try it months ago but now I am really worried about doing it. The company says it is contraindicated in patients that have had a hypersensitivity reaction to any other IV iron prep. I hate the risk of getting blood transfusions so I am wondering if it is worth the risk of trying the Venofer.

I am wondering if there is anyone out there that has had bad reactions to Infed and Ferrlicit but did fine with Venofer? I think I would feel better if I could hear from even one other person that has been in the same situation as me. I need to make a decision quickly as my counts are terrible and I am feeling equally terrible.

Sorry this is so long. I am open to any thoughts or personal experiences.
Thanks!





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