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I have just finished my 3rd dose of IV Venofer. My MD expects that I will need 5-8 doses to replete my ferritin and correct my anemia. I am wondering what kind of improvement people have experienced in their CBC and ferritin levels, following a full 1000mg of Venofer. The literature, I have read, reports quite modest improvement in both of these markers after Venofer but the sample patients all had end stage renal failure. I do not have renal problems.

The studies indicated that the average rise in Hgb was around 1.2 gm/dL. It was quite disheartening to read. I am hoping for much better results. I had 6 doses of IV Ferrlecit last year and my ferritin only bumped from 1 ng/ml up to 14 ng/ml.

My hematologist does not plan to check my counts until 1 week after the 5th dose. I would love to hear of other people's experiences. Thanks so much.

Sincerely, Kiwilily
i had 3 ivs 200mg each so 600 total my ferritin went from 2 to 66 and hemoglobin from 8.5 to 10.8 ithink it is how your body absorbs i guess
Hi ChickieLou,

My cat's name is Kiwi too. Seems to be a popular pet name. Thanks for the info on chelated iron and for telling me about your personal experience with it. I have seen so many doctors and specialists but not one ever mentioned this formulation. I have been on many types of iron so I thought it was strange that this was never suggested. I also found it strange that the regular drug stores did not carry it.

I know that my physicians will want some scientific medical study to back up to back up my request to start the chelated iron. They are not much for anecdotal experience and are very much into evidence based medicine. I would just like to stop the IV iron choo choo train. The infusions are costly, time consuming (6-8 hours to get 200 mg venofer), and I hate the side effects. If I can cure myself by taking on little chelated iron pill each day, that would be great.

Thanks again for you wonderful info. I appreciate really appreciate it.

Kiwi
Kiwi, I just noticed your profile. I lived there once for about 3 years on Crespi. I love it there. That walk up and down that hill to the beach was my exercise, when I was in better shape. It would just about kill me now.

It's not that I don't trust doctors, but I do think their knowledge is incomplete. You might have read about my experience with heart palpitations and it was my acupuncturist who told me about magnesium for it, I took some, and it stopped them cold and they have not returned. When I had them before, my cardiologist told me "they're benign and will eventually go away" and sent me home. Yeah, like 8 months of destroyed sleep later, they went away. At the same time, I would never expect my chiropractor, acupuncturist or massage therapist to know anything about a broken bone. Everyone brings a little something to complete the picture. I think your doctor will have likely heard of chelates, but I suspect he will discourage you from taking them because he feels your anemia is severe enough to skip all oral forms of iron. You will need to assess for yourself whether or not it's worth a try.

I think most docs recommend the drug store ferrous sulfate because it's available to everyone easily. And they are aware of the miserable side effects so in the same breath, they will say "and while you are at the drugstore, pick up a stool softener, or a laxative. You're going to need it". I say "why? when there are other better irons out there, and not just mine. There are people here who absolutely tolerate ferrous sulfate and other iron formations. Most doctors discourage people from ever walking into a health food store for anything. I'm not exactly down on doctors, but I have accepted their "limited thinking" and have had to round out my own care with other "experts".

The good news, I am doing very well. Keep up your own education and with any luck and a little faith, you'll turn your numbers around soon. If your doctor feels strongly that IV iron is the only way to go, then I guess I would hang in there a bit longer. It's not an easy call, I'll grant you that.





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